Subject index - Patients, family and professional experience of health and illness... all in one place : Healthtalkonline

Full list of topics

Recruitment and information :
What is biobanking and why is it important?
Types of biobanking sample
Being invited or volunteering to donate
Information and questions

Deciding whether to take part :
Reasons for wanting to take part – personal benefit
Reasons for wanting to take part – helping medical science & other people
Deciding not to take part
Attitudes to other types of medical research
Donating samples after death for research use

Donating :
What’s involved in taking part?
Ethical issues & future use of samples
Communication and relationship with staff

After donating :
Getting feedback

Messages :
Messages to other people
Messages to professionals

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Biobanking

Subject index

Paul was diagnosed with Motor Neurone Disease (MND) 7 years ago, in 2003. He is a keen research participant, and currently gives regular spinal fluid samples as part of a study which aims to explore how and why MND progresses in different people.

Medical research >> Biobanking >> Healthy volunteers & pregnancy >> Chris - Interview 07 >> Chris has become quite friendly with the research nurses since she started participating. She takes unpaid leave from work to take part even though he

Chris has been a healthy volunteer in several biobanking studies over a number of years. She started with the UK Biobank, but has since become a regular healthy participant in diabetes research. She likes to feel she is helping others.

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