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Medical research
Biobanking
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Full list of topics
Recruitment and information :
What is biobanking and why is it important?
Types of biobanking sample
Being invited or volunteering to donate
Information and questions
Deciding whether to take part :
Reasons for wanting to take part – personal benefit
Reasons for wanting to take part – helping medical science & other people
Deciding not to take part
Attitudes to other types of medical research
Donating samples after death for research use
Donating :
What’s involved in taking part?
Ethical issues & future use of samples
Communication and relationship with staff
After donating :
Getting feedback
Messages :
Messages to other people
Messages to professionals
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Biobanking
People's stories
People with conditions (cancer, MND, hepatitis C)
Gill - Interview 01
:
When Gill had breast cancer, she gave consent for a tumour sample to be kept for research, and gave an extra blood sample for blood ...
Karen - Interview 05
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Karen was diagnosed with melanoma in 1997. It came back in 2005 and she joined a clinical trial. Several times she has given extra blood ...
Andrew - Interview 08
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Andrew discovered he had hepatitis C virus in 2003, when he went to his GP after feeling unwell. He believes he got it from having ...
Jean - Interview 09
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Jean has Motor Neurone Disease (MND). She has given samples to a DNA bank for MND, and is now part of a study using blood ...
Vincent - Interview 10
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Vincent discovered he had Hepatitis C in 2005. Although he was an injecting drug user he never shared needles, so he believes he was infected ...
Paul - Interview 12
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Paul was diagnosed with Motor Neurone Disease (MND) 7 years ago, in 2003. He is a keen research participant, and currently gives regular spinal fluid ...
Roland - Interview 13
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Roland has a rare form of Motor Neurone Disease (Progressive Muscular Atrophy). He is part of a study using blood samples, scans and other tests ...
David - Interview 02
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David was diagnosed with skin cancer 6 years ago in 2004. He has consented to both blood samples and tissue samples from his tumours being ...
Ian - Interview 16
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Ian was diagnosed with Motor Neurone Disease just over two years ago, in 2008. He has taken part in several research studies, including a biobank ...
Colin - Interview 18
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Colin was diagnosed with Hepatitis C in his early twenties. He has taken part in several medical research projects, including currently one which involves giving ...
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