Paul - Interview 12  

Paul - Interview 12

Age at Interview: 63
Sex: Male
Age at Diagnosis: 57
Background: Paul is a retired toolmaker/machinist engineer. He is divorced, with four children ranging in age from 15 to 40, and 3 grandchildren. Ethnic background/nationality: White British.

Brief outline:Paul was diagnosed with Motor Neurone Disease (MND) 7 years ago, in 2003. He is a keen research participant, and currently gives regular spinal fluid samples as part of a study which aims to explore how and why MND progresses in different people.

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Paul - Interview 12
Paul is rewarded by the thought of helping other people and the research staff.

 



It sounds like you have a good relationship with the staff in the clinic?
 
Yes, very much so. I think when they see people are giving, caring, wanting to help, they obviously have a respect for them, and they are able to motivate them. And I just go in and say, “Any more, anything else to volunteer for?” It’s a passion that I have to give as much as I can, as often as I can, to as many as I can, and just keep doing that. And obviously the rewards are immense within oneself, because you realise somewhere, some way along the line, you are helping another person.
 
And with this particular, the biobanking one where they’re taking the spinal fluid and the bloods and so on, are you, do you know how they’re using the data? What are they doing? What are they hoping to find?
 
I am told that it’s been of great help. I never ask questions, but I’m sure that if I did I would have a response to those questions, but just knowing that it has been of immense value to them and being told that is very satisfying and consoling to me. 

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