Jean - Interview 09  

Jean - Interview 09

Age at Interview: 56
Sex: Female
Age at Diagnosis: 50
Background: Jean is a retired consultant anaesthetist. She is married with two grown-up children. Ethnic background/nationality: White British.

Brief outline:Jean has Motor Neurone Disease (MND). She has given samples to a DNA bank for MND, and is now part of a study using blood and spinal fluid, alongside other tests, to improve the diagnosis and understanding of MND.

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Jean - Interview 09
Jean (a former doctor) thinks that staff should make no assumptions about people’s knowledge, and ensure they explain everything clearly to everyone.

 



Anything about the information that you were given that you feel could have been improved, or that you thought was particularly good or? Was it easy to understand?
 
Well, I thought so. I’m probably not the best person to say that, though, because, you know, I have got an advantage in having a medical background. But I think in all honesty that they explained things very well, and I would imagine that for everybody who takes part they feel they’ve got a very good understanding, either from the documentation that they received, or alternatively just talking to the researchers, because they do go through it, you know, very carefully, and I think in fairly easy language. But that’s the one thing that I’m probably not the best placed person to be absolutely certain about, because I’ve got that sort of medical knowledge, that you sort of take a bit of jargon for granted because you know it, and maybe things may, if they slip through the net it may slip past me too. But I would doubt it. I think that the information I got would have been self-explanatory to everybody and was very clear and precise.
 
And actually you’d mentioned before that sometimes you feel disadvantaged as a doctor dealing with other health professionals. And actually this sounds like an instance where that wasn’t the case, that they didn’t assume knowledge that you didn’t have.
 
No, I don’t think it did, basically because I think in a research project that it’s of paramount importance, that you’re dealing with volunteers, basically, and I think it’s very important that you must be sure that whoever it is happy that they’ve got all the information that they need. And I think the way to treat anybody, from whatever background they are, is to treat everybody the same. And I think that’s true in clinical medicine as well. Don’t make assumptions. And I think it’s, you know, of paramount importance if you’re dealing with a volunteer in research. And therefore it’s much easier for the researchers to go through the same talk initially with first-time study participants, irrespective of their background, and I think that’s what they tend to do.

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