Jean - Interview 09  

Jean - Interview 09

Age at Interview: 56
Sex: Female
Age at Diagnosis: 50
Background: Jean is a retired consultant anaesthetist. She is married with two grown-up children. Ethnic background/nationality: White British.

Brief outline:Jean has Motor Neurone Disease (MND). She has given samples to a DNA bank for MND, and is now part of a study using blood and spinal fluid, alongside other tests, to improve the diagnosis and understanding of MND.

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Jean - Interview 09
Jean thinks people should be aware of how much time may be involved in taking part in research.

 



So I thought I’d volunteer and I found it quite an interesting experience. It’s, I think one’s got to be well aware of the time element - I don’t mean in terms of the number of visits per se, I mean it’s twice a year - but you’ve got to be prepared to give up, you know, five hours plus to get through all the tests that are needed, and I knew that as somebody with slowly progressive MND then I was probably better placed than many to be able to cope with that.

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