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Discovery :
Parent's reactions
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After birth:
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During pregnancy:
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Adapting to life :
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Feeding & medication :
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Surgery & cardiac catheterisation :
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Parents of children with congenital heart disease

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Their son was diagnosed with mirror image, transposition of the great arteries, left sided valve atresia and pulmonary stenosis. Treatment: A BT Shunt at six months old, followed by the Stage 1 Glenn procedure at 4.5 yrs. Cardiac catheter operations every 2 yrs. Further surgery is planned. Current medication: aspirin.

Heart disease >> Parents of children with congenital heart disease >> Child aged under 1 >> Interview CH01 >> Describes fear that siblings would feel neglected when their parents were spending time at the hospital and how it helped for an older child to visit

Their son was diagnosed with Hypoplastic Left Heart Syndrome. Treatment: Japanese Stage 1 Norwood at 4 days old and Stage 2 Norwood at 4 months old. Stage 3 is planned for pre-school. Heart Scan at local hospital every 3 months. Current medication: aspirin, captopril. Monthly injection to prevent bronchial infections.

Heart disease >> Parents of children with congenital heart disease >> Child aged 1-3 >> Interview CH06 >> They started to explain that his baby sister had a problem when they found out during pregnancy. In spite of appearing indifferent to the information

Their daughter was diagnosed with Hypoplastic Right Heart Syndrome, Tricuspid Valve, Coarctation of the Aorta, Transposition of the Great Arteries. Treatment: A banding operation at 22 hrs old, repeated at 1 week old. A cardiac catheter at 10 months and a CP shunt at 1 yr. Further palliative operations planned. Current medication: Phenoxybenzamine Hydrochloride.

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