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Heart disease
Parents of children with congenital heart disease
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After birth:
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During pregnancy:
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Adapting to life :
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Feeding & medication :
Feeding
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Surgery & cardiac catheterisation :
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Parents of children with congenital heart disease
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Heart disease
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Parents of children with congenital heart disease
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Child aged 1-3
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Interview CH04
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Tell how they overcame problems giving medicine to their baby - and that now she is 3 they don't let the medicines affect daily life.
Their daughter was diagnosed with Truncus Arteriosus. Treatment: Surgery at 5 weeks old to fit a conduit and repair the hole. Cardiac catheterisation planned for pre-school. Current medication: captopril.
Heart disease
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Parents of children with congenital heart disease
>>
Child aged 1-3
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Interview CH20
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Their son hates taking his medicine because it was forced on him as a baby.
Toby was diagnosed with Tetralogy of Fallots and mild branch pulmonary stenosis at six weeks old. Treatment: he had a catheter at 6 months old and corrective open heart surgery at 8 months old. Current medication: none.
Heart disease
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Parents of children with congenital heart disease
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Child aged 1-3
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Interview CH14
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Recalls the dilemma when her baby brought up his medicine, but says it gets better as they get older and now her 3-year-old takes his medicine in the
Sam was diagnosed with a complete Atrioventricular Septal Defect (AVSD), pulmonary atresia and right atrial isomerism. Other problems: No spleen and mal-rotation of the gut. Treatment: A BT shunt at 24 hrs old, followed by the Glenn procedure at 6 months. More surgery planned. Current medication: warfarin, penicillin.
Heart disease
>>
Parents of children with congenital heart disease
>>
Child aged 1-3
>>
Interview CH30
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Describes taking their toddler to the anaesthetic room for her operation and how they were able to make it a less traumatic experience for her.
Their daughter was diagnosed with pulmonary atresia, VSD, and an overiding aorta. Treatment: closed heart surgery (shunt) at 11 days old closed heart surgery (shunt) at 11 months old. Corrective open heart surgery at 2 and a half yrs old. Current medication: none.
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