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Heart disease
Parents of children with congenital heart disease
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Parent's reactions
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Surgery & cardiac catheterisation :
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Parents of children with congenital heart disease
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Heart disease
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Parents of children with congenital heart disease
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Child aged under 1
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Interview CH03
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Describes the benefits of going on a charity open day and meeting people who had experience of what they were going to have to go through.
Their son was diagnosed with Tricuspid Atresia, a large VSD, ASD, small right ventricle and small pulmonary artery. Treatment: Modified BT Shunt and Atrial Septostomy at 24 hrs old. Cardiac catheters planned. Further operations planned when their child is older. Current medication: diuretics, aspirin, sytron, anti-reflux and lactulose.
Heart disease
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Parents of children with congenital heart disease
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Child aged 1-3
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Interview CH05
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Felt that there was a tendency in the support group she attended to focus on negative things and did not find this helpful.
Joe was diagnosed with Di-George Syndrome and Tetralogy of Fallots. Treatment: one operation at 3 weeks old, 10 months and at 18 months old. Current medication: none.
Heart disease
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Parents of children with congenital heart disease
>>
Child aged 1-3
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Interview CH05
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Explains how her older son had benefited from the support group his mother had joined.
Joe was diagnosed with Di-George Syndrome and Tetralogy of Fallots. Treatment: one operation at 3 weeks old, 10 months and at 18 months old. Current medication: none.
Heart disease
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Parents of children with congenital heart disease
>>
Child aged 1-3
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Interview CH10
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She finds the Heart Link Newsletter helpful in providing information and support.
Their son was diagnosed with Transposition of the Great Arteries, ASD, VSD, Atrial Isomerism and Pulmonary Stenosis. He has Dextro cardia and Bronchial Isomerism. Treatment: none given yet, surgery planned for when their son is older. Current medication: ventolin & flixotide for asthma.
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