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Heart disease
Parents of children with congenital heart disease
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Discovery :
Parent's reactions
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After birth:
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During pregnancy:
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Adapting to life :
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Talking to your child about their heart
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Feeding & medication :
Feeding
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The death of a child :
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Surgery & cardiac catheterisation :
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The operation
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Child's quality of life & development :
A child's quality of life
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Parents of children with congenital heart disease
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Heart disease
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Parents of children with congenital heart disease
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Child aged 1-3
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Interview CH14
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Describes the battle she had feeding her newborn baby but said it got better when he went on to solids.
Sam was diagnosed with a complete Atrioventricular Septal Defect (AVSD), pulmonary atresia and right atrial isomerism. Other problems: No spleen and mal-rotation of the gut. Treatment: A BT shunt at 24 hrs old, followed by the Glenn procedure at 6 months. More surgery planned. Current medication: warfarin, penicillin.
Heart disease
>>
Parents of children with congenital heart disease
>>
Child aged 1-3
>>
Interview CH15
>>
It was difficult weaning her baby on to solids because she had difficulty chewing which she thinks is because she was fed by NG tube for a long time a
Taylor was diagnosed with a complete Atrioventricular septal defect (AVSD). Treatment: surgery at 6 months old. No further treatment planned. Current medication: none.
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