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Discovery :
Parent's reactions
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Finding information
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Talking to health professionals
After birth:
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During pregnancy:
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Adapting to life :
How it affects daily life
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Talking to your child about their heart
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Feeding & medication :
Feeding
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The death of a child :
Dying in hospital
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Surgery & cardiac catheterisation :
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Waiting for an operation
The operation
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Child's quality of life & development :
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Parents of children with congenital heart disease

Subject index

Thomas was diagnosed with Tricuspid Atresia, Transposition of the Great Arteries and Coarctation of the Aorta. Treatment: An arterial switch operation at 36 hrs old followed by a BT shunt at 5 months, a Kawashima at 33 months and a Fontan at age 7. Current medication: wafarin.

Heart disease >> Parents of children with congenital heart disease >> Child aged 1-3 >> Interview CH06 >> They describe some of the help available and advise others to ask for help if they need it.

Their daughter was diagnosed with Hypoplastic Right Heart Syndrome, Tricuspid Valve, Coarctation of the Aorta, Transposition of the Great Arteries. Treatment: A banding operation at 22 hrs old, repeated at 1 week old. A cardiac catheter at 10 months and a CP shunt at 1 yr. Further palliative operations planned. Current medication: Phenoxybenzamine Hydrochloride.

Heart disease >> Parents of children with congenital heart disease >> Child aged 4-5 >> Interview CH18 >> Describe the various help they received to care for their son at home.

Their son was diagnosed with mirror image, transposition of the great arteries, left sided valve atresia and pulmonary stenosis. Treatment: A BT Shunt at six months old, followed by the Stage 1 Glenn procedure at 4.5 yrs. Cardiac catheter operations every 2 yrs. Further surgery is planned. Current medication: aspirin.

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