Subject index - Patients, family and professional experience of health and illness... all in one place : Healthtalkonline

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Discovery :
Parent's reactions
Telling others
Your ideas about causes
Finding information
Sources of support
Talking to health professionals
After birth:
- Signs, symptoms & diagnosis after birth
During pregnancy:
- Scans, tests & decisions during pregnancy
- Preparing for birth & labour

Adapting to life :
How it affects daily life
Follow-up
Coping
Talking to your child about their heart
Financial concerns
Messages to other parents
Impact on family

Feeding & medication :
Feeding
Medication

The death of a child :
Dying in hospital
Funeral, post mortem & inquest
Bereavement, sources support & reactions of others

Surgery & cardiac catheterisation :
Emergency surgery
Waiting for an operation
The operation
Accommodation for parents
Paediatric intensive care
Moving to the ward
Taking your child home
Pacemakers

Child's quality of life & development :
A child's quality of life
A child's development

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Parents of children with congenital heart disease

Subject index

Vikram was diagnosed with a large ventricular septal defect (VSD) at 3 months old. He had corrective open heart surgery to close the VSD at four and a half months old. He is recovering well and no further treatment is expected. Current medication: none.

Heart disease >> Parents of children with congenital heart disease >> Child aged 1-3 >> Interview CH07 >> They sought a second opinion so that they could decide which hospital to have their son treated at.

Felix was diagnosed with Hypoplastic Left Ventricle, VSD, Mitral Atresia, Pulmonary Atresia, Right Atrial Isomerism, aorta arising from the right ventricle, TAPVD and Bilateral Superior Vena Cava and no spleen. Treatment: modified BT shunt (6 days old) open heart surgery (3 months and 6 months), 1st stage Fontan (10 months). Further surgery planned. Current medication: warfarin, enanapril, frusemide, penicillin.

Heart disease >> Parents of children with congenital heart disease >> Child aged over 5 >> Interview CH24 >> Describes how they overcame the problem when senior members of her family disagreed with the treatment her son was being offered for his heart conditi

Their son was diagnosed with Bradycardia during pregnancy. A VSD, PDA and a double aortic arch were diagnosed when he was 3 weeks old. Treatment: surgery at 8 weeks old to correct double aortic arch and to close pulmonary duct artery. Increasing drop in heartbeat (Bradycardia) led to emergency pacemaker fitted at 6yrs old. Current medication: none.

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