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Discovery :
Parent's reactions
Telling others
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After birth:
- Signs, symptoms & diagnosis after birth
During pregnancy:
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Adapting to life :
How it affects daily life
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Talking to your child about their heart
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Feeding & medication :
Feeding
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The death of a child :
Dying in hospital
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Bereavement, sources support & reactions of others

Surgery & cardiac catheterisation :
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The operation
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Child's quality of life & development :
A child's quality of life
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Parents of children with congenital heart disease

Subject index

Their daughter was diagnosed with ostium primum Atrial Septal Defect (ASD). Treatment: Surgery at 18 months old to close the hole with a dacron patch. Stitches in the mitral valve. No further surgery planned. Current medication: none.

Heart disease >> Parents of children with congenital heart disease >> Child aged under 1 >> Interview CH28 >> Explains that her baby's grandparents were always optimistic and positive when speaking to her while her baby was in intensive care for four and a hal

Noah (2000-2001) was diagnosed with critical aortic stenosis at 12 hours old. He died aged 4 and a half months old following three operations to try to repair his heart. Noah spent 4 and a half months in intensive care.

Heart disease >> Parents of children with congenital heart disease >> Child aged 1-3 >> Interview CH08 >> They focus on the positive things their son can do and don't treat him as a child with a heart condition.

Daniel was diagnosed with Tricuspid Atresia, Hypoplastic Right Ventricle, VSD and Transposition of the Great Arteries. Treatment: cardiac catheter at 24 hrs old, banding operation at 2 weeks old, followed by 1st stage Fontan at 10 months old. Further catheters and surgery planned. Current medication: warfarin.

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