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Discovery :
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After birth:
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Adapting to life :
How it affects daily life
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Feeding & medication :
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Surgery & cardiac catheterisation :
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Child's quality of life & development :
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Parents of children with congenital heart disease

Subject index

Felix was diagnosed with Hypoplastic Left Ventricle, VSD, Mitral Atresia, Pulmonary Atresia, Right Atrial Isomerism, aorta arising from the right ventricle, TAPVD and Bilateral Superior Vena Cava and no spleen. Treatment: modified BT shunt (6 days old) open heart surgery (3 months and 6 months), 1st stage Fontan (10 months). Further surgery planned. Current medication: warfarin, enanapril, frusemide, penicillin.

Heart disease >> Parents of children with congenital heart disease >> Child aged 4-5 >> Interview CH16 >> Her 5 year old daughter who has pulmonary stenosis has plenty of energy and goes to tennis lessons, swimming lessons and dancing every week.

Eleanor was diagnosed with pulmonary stenosis. Treatment: a balloon catheter operation at six weeks old. No further treatment planned. Current medication: none.

Heart disease >> Parents of children with congenital heart disease >> Child aged over 5 >> Interview CH19 >> Explains that her son had a very good quality of life, even though he had a serious heart condition and was very ill.

Luke (1996-2002) was diagnosed with coarctation of the aorta, transposition of the great arteries, VSD, pulmonary stenosis and double inlet left ventricle. He died when he was nearly 6 yrs old after his fourth operation (not including cardiac catheters). He had epilepsy and asthma and was quite ill at times. Medication: warfarin, medicines for asthma and epilepsy, diuretics after operations. Family live 15 miles from the specialist hospital.

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