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Heart disease
Parents of children with congenital heart disease
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After birth:
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During pregnancy:
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Adapting to life :
How it affects daily life
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Talking to your child about their heart
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Feeding
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Surgery & cardiac catheterisation :
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Pacemakers
Child's quality of life & development :
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Parents of children with congenital heart disease
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Heart disease
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Parents of children with congenital heart disease
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Child aged over 5
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Interview CH24
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Describes how they overcame the problem when senior members of her family disagreed with the treatment her son was being offered for his heart conditi
Their son was diagnosed with Bradycardia during pregnancy. A VSD, PDA and a double aortic arch were diagnosed when he was 3 weeks old. Treatment: surgery at 8 weeks old to correct double aortic arch and to close pulmonary duct artery. Increasing drop in heartbeat (Bradycardia) led to emergency pacemaker fitted at 6yrs old. Current medication: none.
Heart disease
>>
Parents of children with congenital heart disease
>>
Child aged over 5
>>
Interview CH24
>>
Describes what her son's pacemaker operation and recovery was like.
Their son was diagnosed with Bradycardia during pregnancy. A VSD, PDA and a double aortic arch were diagnosed when he was 3 weeks old. Treatment: surgery at 8 weeks old to correct double aortic arch and to close pulmonary duct artery. Increasing drop in heartbeat (Bradycardia) led to emergency pacemaker fitted at 6yrs old. Current medication: none.
Heart disease
>>
Parents of children with congenital heart disease
>>
Child aged over 5
>>
Interview CH24
>>
Describes the physical improvements in her son's health following his pacemaker operation.
Their son was diagnosed with Bradycardia during pregnancy. A VSD, PDA and a double aortic arch were diagnosed when he was 3 weeks old. Treatment: surgery at 8 weeks old to correct double aortic arch and to close pulmonary duct artery. Increasing drop in heartbeat (Bradycardia) led to emergency pacemaker fitted at 6yrs old. Current medication: none.
Heart disease
>>
Parents of children with congenital heart disease
>>
Child aged 4-5
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Interview CH26
>>
Explains that the pacemaker her daughter has, which is used as a back up if her heartbeat becomes too slow, is very small and she leads a perfectly no
Her daughter was diagnosed with Partial Ventricular Septal Defect after GP noticed a heart murmur when she was two. Treatment: open heart surgery to repair hole and mend the valve at 2½ yrs old. Pacemaker fitted 5 days after surgery. Possibility of further surgery in the future. Current medication: none.
Heart disease
>>
Parents of children with congenital heart disease
>>
Child aged 4-5
>>
Interview CH26
>>
Describes how her daughter's pacemaker was checked at follow-up appointments at the pacemaker clinic.
Her daughter was diagnosed with Partial Ventricular Septal Defect after GP noticed a heart murmur when she was two. Treatment: open heart surgery to repair hole and mend the valve at 2½ yrs old. Pacemaker fitted 5 days after surgery. Possibility of further surgery in the future. Current medication: none.
Heart disease
>>
Parents of children with congenital heart disease
>>
Child aged 4-5
>>
Interview CH26
>>
Explains that the whole family had found it reassuring to watch a video about pacemakers for children.
Her daughter was diagnosed with Partial Ventricular Septal Defect after GP noticed a heart murmur when she was two. Treatment: open heart surgery to repair hole and mend the valve at 2½ yrs old. Pacemaker fitted 5 days after surgery. Possibility of further surgery in the future. Current medication: none.
Heart disease
>>
Parents of children with congenital heart disease
>>
Child aged 4-5
>>
Interview CH26
>>
Describes how she felt about her daughter having a pacemaker implanted.
Her daughter was diagnosed with Partial Ventricular Septal Defect after GP noticed a heart murmur when she was two. Treatment: open heart surgery to repair hole and mend the valve at 2½ yrs old. Pacemaker fitted 5 days after surgery. Possibility of further surgery in the future. Current medication: none.
Heart disease
>>
Parents of children with congenital heart disease
>>
Child aged 4-5
>>
Interview CH26
>>
Describes how her daughter's pacemaker was checked at follow-up appointments at the pacemaker clinic.
Her daughter was diagnosed with Partial Ventricular Septal Defect after GP noticed a heart murmur when she was two. Treatment: open heart surgery to repair hole and mend the valve at 2½ yrs old. Pacemaker fitted 5 days after surgery. Possibility of further surgery in the future. Current medication: none.
Topic
Heart disease
>>
Parents of children with congenital heart disease
>>
Pacemakers
>>
Pacemakers
Pacemakers
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