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Heart disease
Parents of children with congenital heart disease
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Adapting to life :
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Surgery & cardiac catheterisation :
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Parents of children with congenital heart disease
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Heart disease
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Parents of children with congenital heart disease
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Child aged 4-5
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Interview CH18
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It took a bit of time to build up her son's confidence to be at nursery without his mum but now he is happy to be left there and he enjoys it.
Their son was diagnosed with mirror image, transposition of the great arteries, left sided valve atresia and pulmonary stenosis. Treatment: A BT Shunt at six months old, followed by the Stage 1 Glenn procedure at 4.5 yrs. Cardiac catheter operations every 2 yrs. Further surgery is planned. Current medication: aspirin.
Heart disease
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Parents of children with congenital heart disease
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Child aged over 5
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Interview CH19
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Her son had a one-to-one helper at school and when he went to school with his NG tube the other children accepted it.
Luke (1996-2002) was diagnosed with coarctation of the aorta, transposition of the great arteries, VSD, pulmonary stenosis and double inlet left ventricle. He died when he was nearly 6 yrs old after his fourth operation (not including cardiac catheters). He had epilepsy and asthma and was quite ill at times. Medication: warfarin, medicines for asthma and epilepsy, diuretics after operations. Family live 15 miles from the specialist hospital.
Heart disease
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Parents of children with congenital heart disease
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Child aged 1-3
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Interview CH10
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She gave the nursery an information pack which she had compiled about her son's heart condition and the care needed.
Their son was diagnosed with Transposition of the Great Arteries, ASD, VSD, Atrial Isomerism and Pulmonary Stenosis. He has Dextro cardia and Bronchial Isomerism. Treatment: none given yet, surgery planned for when their son is older. Current medication: ventolin & flixotide for asthma.
Heart disease
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Parents of children with congenital heart disease
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Child aged 1-3
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Interview CH05
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Her two year old loves going to nursery and his development has progressed since attending nursery.
Joe was diagnosed with Di-George Syndrome and Tetralogy of Fallots. Treatment: one operation at 3 weeks old, 10 months and at 18 months old. Current medication: none.
Heart disease
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Parents of children with congenital heart disease
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Child aged 1-3
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Interview CH04
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She didn't tell the playgroup that her daughter has a heart condition because she didn't want them to treat her any differently.
Their daughter was diagnosed with Truncus Arteriosus. Treatment: Surgery at 5 weeks old to fit a conduit and repair the hole. Cardiac catheterisation planned for pre-school. Current medication: captopril.
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