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Heart disease
Parents of children with congenital heart disease
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After birth:
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Adapting to life :
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Feeding & medication :
Feeding
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Surgery & cardiac catheterisation :
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Parents of children with congenital heart disease
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Heart disease
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Parents of children with congenital heart disease
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Child aged 1-3
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Interview CH13
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Comments that she has become more relaxed about minor illnesses after her baby's surgery because she realises how resilient he is.
Joshua was diagnosed with Atrioventricular Septal Defect (AVSD) and Down's syndrome. Treatment: surgery at 4 months to repair his AVSD. No further treatment planned. Current medication: aspirin.
Heart disease
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Parents of children with congenital heart disease
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Child aged under 1
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Interview CH03
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Have taken their baby back to the hospital when they had concerns about symptoms.
Their son was diagnosed with Tricuspid Atresia, a large VSD, ASD, small right ventricle and small pulmonary artery. Treatment: Modified BT Shunt and Atrial Septostomy at 24 hrs old. Cardiac catheters planned. Further operations planned when their child is older. Current medication: diuretics, aspirin, sytron, anti-reflux and lactulose.
Heart disease
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Parents of children with congenital heart disease
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Child aged 4-5
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Interview CH09
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There is no specialist hospital nearby. If she has concerns she calls the specialist and she has always found that they will speak to her and answer h
Their son was diagnosed with Coarctation of the Aorta, PDA, Bicuspid Aortic Valve, Hypoplastic Aortic Arch, VSD, Mitral Stenosis and Pulmonary Hypertension. Treatment: Surgery at 3 weeks old, mitral valve replacement at 2.5 years. 2 cardiac catheterisations at 2½ yrs and at 3½ yrs. Further mitral valve replacement planned. Current medication: warfarin.
Heart disease
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Parents of children with congenital heart disease
>>
Child aged 1-3
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Interview CH23
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Describe being worried about minor illnesses when their child was first home from hospital.
Caitlan was diagnosed with Pulmonary Atresia, VSD and Dextro cardia. Treatment: closed heart surgery at 48 hrs old and open heart surgery at 11 months old. Further surgery planned when their daughter is older. Current medication: none.
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