Subject index - Patients, family and professional experience of health and illness... all in one place : Healthtalkonline

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Discovery :
Parent's reactions
Telling others
Your ideas about causes
Finding information
Sources of support
Talking to health professionals
After birth:
- Signs, symptoms & diagnosis after birth
During pregnancy:
- Scans, tests & decisions during pregnancy
- Preparing for birth & labour

Adapting to life :
How it affects daily life
Follow-up
Coping
Talking to your child about their heart
Financial concerns
Messages to other parents
Impact on family

Feeding & medication :
Feeding
Medication

The death of a child :
Dying in hospital
Funeral, post mortem & inquest
Bereavement, sources support & reactions of others

Surgery & cardiac catheterisation :
Emergency surgery
Waiting for an operation
The operation
Accommodation for parents
Paediatric intensive care
Moving to the ward
Taking your child home
Pacemakers

Child's quality of life & development :
A child's quality of life
A child's development

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Parents of children with congenital heart disease

Subject index

Toby was diagnosed with Tetralogy of Fallots and mild branch pulmonary stenosis at six weeks old. Treatment: he had a catheter at 6 months old and corrective open heart surgery at 8 months old. Current medication: none.

Heart disease >> Parents of children with congenital heart disease >> Child aged 1-3 >> Interview CH22 >> Describes the different sources of information they used and their usefulness.

Millie was diagnosed with Coarctation of the Aorta and a VSD at 3 weeks old. Treatment: she had closed heart surgery to repair the coarctation and a band was put around the pulmonary artery at 3 weeks old. At 7 months old she had open heart surgery to repair her VSD. Current medication: captopril.

Heart disease >> Parents of children with congenital heart disease >> Child aged 1-3 >> Interview CH20 >> Initially found the terminology used by doctors difficult to understand and didn't feel able to ask for explanations.

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