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Discovery :
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Parents of children with congenital heart disease

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Joshua was diagnosed with Atrioventricular Septal Defect (AVSD) and Down's syndrome. Treatment: surgery at 4 months to repair his AVSD. No further treatment planned. Current medication: aspirin.

Heart disease >> Parents of children with congenital heart disease >> Child aged 4-5 >> Interview CH18 >> Explain their different information needs and how they managed to both get the information they needed in the way they wanted to hear it.

Their son was diagnosed with mirror image, transposition of the great arteries, left sided valve atresia and pulmonary stenosis. Treatment: A BT Shunt at six months old, followed by the Stage 1 Glenn procedure at 4.5 yrs. Cardiac catheter operations every 2 yrs. Further surgery is planned. Current medication: aspirin.

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