Subject index - Patients, family and professional experience of health and illness... all in one place : Healthtalkonline

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Discovery :
Parent's reactions
Telling others
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Finding information
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Talking to health professionals
After birth:
- Signs, symptoms & diagnosis after birth
During pregnancy:
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- Preparing for birth & labour

Adapting to life :
How it affects daily life
Follow-up
Coping
Talking to your child about their heart
Financial concerns
Messages to other parents
Impact on family

Feeding & medication :
Feeding
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The death of a child :
Dying in hospital
Funeral, post mortem & inquest
Bereavement, sources support & reactions of others

Surgery & cardiac catheterisation :
Emergency surgery
Waiting for an operation
The operation
Accommodation for parents
Paediatric intensive care
Moving to the ward
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Child's quality of life & development :
A child's quality of life
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Parents of children with congenital heart disease

Subject index

Sam was diagnosed with a complete Atrioventricular Septal Defect (AVSD), pulmonary atresia and right atrial isomerism. Other problems: No spleen and mal-rotation of the gut. Treatment: A BT shunt at 24 hrs old, followed by the Glenn procedure at 6 months. More surgery planned. Current medication: warfarin, penicillin.

Heart disease >> Parents of children with congenital heart disease >> Child aged 1-3 >> Interview CH10 >> Their involvement in community life has decreased because their son was often ill and was susceptible to infections.

Their son was diagnosed with Transposition of the Great Arteries, ASD, VSD, Atrial Isomerism and Pulmonary Stenosis. He has Dextro cardia and Bronchial Isomerism. Treatment: none given yet, surgery planned for when their son is older. Current medication: ventolin & flixotide for asthma.

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