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Discovery :
Parent's reactions
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After birth:
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During pregnancy:
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Adapting to life :
How it affects daily life
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Talking to your child about their heart
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Feeding & medication :
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Surgery & cardiac catheterisation :
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Parents of children with congenital heart disease

Subject index

Their daughter was diagnosed with Truncus Arteriosus. Treatment: Surgery at 5 weeks old to fit a conduit and repair the hole. Cardiac catheterisation planned for pre-school. Current medication: captopril.

Heart disease >> Parents of children with congenital heart disease >> Child aged over 5 >> Interview CH21 >> Her concerns about her baby's symptoms were not taken seriously by the health visitor or her GP until she saw a different GP who noticed that she was

Their daughter was diagnosed with Total Anomalous Pulmonary Venous Circulation. She had open heart surgery at 5 months old. Current medication: none.

Heart disease >> Parents of children with congenital heart disease >> Child aged 1-3 >> Interview CH22 >> She was glad she didn't find out in pregnancy that her daughter had co-arctation of the aorta and VSD.

Millie was diagnosed with Coarctation of the Aorta and a VSD at 3 weeks old. Treatment: she had closed heart surgery to repair the coarctation and a band was put around the pulmonary artery at 3 weeks old. At 7 months old she had open heart surgery to repair her VSD. Current medication: captopril.

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