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Discovery :
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After birth:
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Surgery & cardiac catheterisation :
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Parents of children with congenital heart disease

Subject index

Eleanor was diagnosed with pulmonary stenosis. Treatment: a balloon catheter operation at six weeks old. No further treatment planned. Current medication: none.

Heart disease >> Parents of children with congenital heart disease >> Child aged over 5 >> Interview CH19 >> Describes how her son managed to come first in the running race at the school sport day.

Luke (1996-2002) was diagnosed with coarctation of the aorta, transposition of the great arteries, VSD, pulmonary stenosis and double inlet left ventricle. He died when he was nearly 6 yrs old after his fourth operation (not including cardiac catheters). He had epilepsy and asthma and was quite ill at times. Medication: warfarin, medicines for asthma and epilepsy, diuretics after operations. Family live 15 miles from the specialist hospital.

Heart disease >> Parents of children with congenital heart disease >> Child aged 4-5 >> Interview CH09 >> Her 5 year old son who had a complex heart condition has plenty of energy, is very outgoing and can stand up for himself at school.

Their son was diagnosed with Coarctation of the Aorta, PDA, Bicuspid Aortic Valve, Hypoplastic Aortic Arch, VSD, Mitral Stenosis and Pulmonary Hypertension. Treatment: Surgery at 3 weeks old, mitral valve replacement at 2.5 years. 2 cardiac catheterisations at 2½ yrs and at 3½ yrs. Further mitral valve replacement planned. Current medication: warfarin.

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