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Discovery :
Parent's reactions
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Talking to health professionals
After birth:
- Signs, symptoms & diagnosis after birth
During pregnancy:
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Adapting to life :
How it affects daily life
Follow-up
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Talking to your child about their heart
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Impact on family

Feeding & medication :
Feeding
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The death of a child :
Dying in hospital
Funeral, post mortem & inquest
Bereavement, sources support & reactions of others

Surgery & cardiac catheterisation :
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Waiting for an operation
The operation
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Child's quality of life & development :
A child's quality of life
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Parents of children with congenital heart disease

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Thomas was diagnosed with Tricuspid Atresia, Transposition of the Great Arteries and Coarctation of the Aorta. Treatment: An arterial switch operation at 36 hrs old followed by a BT shunt at 5 months, a Kawashima at 33 months and a Fontan at age 7. Current medication: wafarin.

Heart disease >> Parents of children with congenital heart disease >> Child aged 4-5 >> Interview CH09 >> Explains how they got a INR home testing machine and the difference it has made to their life.

Their son was diagnosed with Coarctation of the Aorta, PDA, Bicuspid Aortic Valve, Hypoplastic Aortic Arch, VSD, Mitral Stenosis and Pulmonary Hypertension. Treatment: Surgery at 3 weeks old, mitral valve replacement at 2.5 years. 2 cardiac catheterisations at 2½ yrs and at 3½ yrs. Further mitral valve replacement planned. Current medication: warfarin.

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