Subject index - Patients, family and professional experience of health and illness... all in one place : Healthtalkonline

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Discovery :
Parent's reactions
Telling others
Your ideas about causes
Finding information
Sources of support
Talking to health professionals
After birth:
- Signs, symptoms & diagnosis after birth
During pregnancy:
- Scans, tests & decisions during pregnancy
- Preparing for birth & labour

Adapting to life :
How it affects daily life
Follow-up
Coping
Talking to your child about their heart
Financial concerns
Messages to other parents
Impact on family

Feeding & medication :
Feeding
Medication

The death of a child :
Dying in hospital
Funeral, post mortem & inquest
Bereavement, sources support & reactions of others

Surgery & cardiac catheterisation :
Emergency surgery
Waiting for an operation
The operation
Accommodation for parents
Paediatric intensive care
Moving to the ward
Taking your child home
Pacemakers

Child's quality of life & development :
A child's quality of life
A child's development

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Parents of children with congenital heart disease

Subject index

Sam was diagnosed with a complete Atrioventricular Septal Defect (AVSD), pulmonary atresia and right atrial isomerism. Other problems: No spleen and mal-rotation of the gut. Treatment: A BT shunt at 24 hrs old, followed by the Glenn procedure at 6 months. More surgery planned. Current medication: warfarin, penicillin.

Heart disease >> Parents of children with congenital heart disease >> Child aged 1-3 >> Interview CH22 >> They started searching for a reason for their daughter's heart defect but were reassured when their doctor told them they had not done anything to cau

Millie was diagnosed with Coarctation of the Aorta and a VSD at 3 weeks old. Treatment: she had closed heart surgery to repair the coarctation and a band was put around the pulmonary artery at 3 weeks old. At 7 months old she had open heart surgery to repair her VSD. Current medication: captopril.

Heart disease >> Parents of children with congenital heart disease >> Child aged 1-3 >> Interview CH11 >> Comments that Wolff-Parkinson-White syndrome, a heart defect had not been identified in her family until her son was diagnosed with it.

Jack was diagnosed with Supraventricular Tachycardia (SVT), which was later diagnosed as Wolff-Parkinson-White Syndrome. Treatment: none given yet. A radio-frequency catheter ablation is planned at age 5-7 years. Current medication: none, amiodarone until age 1yr.

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