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Discovery :
Parent's reactions
Telling others
Your ideas about causes
Finding information
Sources of support
Talking to health professionals
After birth:
- Signs, symptoms & diagnosis after birth
During pregnancy:
- Scans, tests & decisions during pregnancy
- Preparing for birth & labour

Adapting to life :
How it affects daily life
Follow-up
Coping
Talking to your child about their heart
Financial concerns
Messages to other parents
Impact on family

Feeding & medication :
Feeding
Medication

The death of a child :
Dying in hospital
Funeral, post mortem & inquest
Bereavement, sources support & reactions of others

Surgery & cardiac catheterisation :
Emergency surgery
Waiting for an operation
The operation
Accommodation for parents
Paediatric intensive care
Moving to the ward
Taking your child home
Pacemakers

Child's quality of life & development :
A child's quality of life
A child's development

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Parents of children with congenital heart disease

Subject index

Their daughter was diagnosed with ostium primum Atrial Septal Defect (ASD). Treatment: Surgery at 18 months old to close the hole with a dacron patch. Stitches in the mitral valve. No further surgery planned. Current medication: none.

Heart disease >> Parents of children with congenital heart disease >> Child aged 1-3 >> Interview CH04 >> Getting pregnant again helped her through the first year after her daughter's diagnosis.

Their daughter was diagnosed with Truncus Arteriosus. Treatment: Surgery at 5 weeks old to fit a conduit and repair the hole. Cardiac catheterisation planned for pre-school. Current medication: captopril.

Heart disease >> Parents of children with congenital heart disease >> Child aged 1-3 >> Interview CH12 >> Explains making the decision to consent to their daughter's operation.

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