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Discovery :
Parent's reactions
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After birth:
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During pregnancy:
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Adapting to life :
How it affects daily life
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Talking to your child about their heart
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Feeding & medication :
Feeding
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The death of a child :
Dying in hospital
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Surgery & cardiac catheterisation :
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The operation
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Child's quality of life & development :
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Parents of children with congenital heart disease

Subject index

Their son was diagnosed with Coarctation of the Aorta, PDA, Bicuspid Aortic Valve, Hypoplastic Aortic Arch, VSD, Mitral Stenosis and Pulmonary Hypertension. Treatment: Surgery at 3 weeks old, mitral valve replacement at 2.5 years. 2 cardiac catheterisations at 2½ yrs and at 3½ yrs. Further mitral valve replacement planned. Current medication: warfarin.

Heart disease >> Parents of children with congenital heart disease >> Child aged 4-5 >> Interview CH18 >> They felt very alone and unsupported for the first six months after their son was diagnosed and until the time of his first operation when they got he

Their son was diagnosed with mirror image, transposition of the great arteries, left sided valve atresia and pulmonary stenosis. Treatment: A BT Shunt at six months old, followed by the Stage 1 Glenn procedure at 4.5 yrs. Cardiac catheter operations every 2 yrs. Further surgery is planned. Current medication: aspirin.

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