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Discovery :
Parent's reactions
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After birth:
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Adapting to life :
How it affects daily life
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Feeding & medication :
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Surgery & cardiac catheterisation :
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Parents of children with congenital heart disease

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Millie was diagnosed with Coarctation of the Aorta and a VSD at 3 weeks old. Treatment: she had closed heart surgery to repair the coarctation and a band was put around the pulmonary artery at 3 weeks old. At 7 months old she had open heart surgery to repair her VSD. Current medication: captopril.

Heart disease >> Parents of children with congenital heart disease >> Child aged 1-3 >> Interview CH07 >> They sought a second opinion so that they could decide which hospital to have their son treated at.

Felix was diagnosed with Hypoplastic Left Ventricle, VSD, Mitral Atresia, Pulmonary Atresia, Right Atrial Isomerism, aorta arising from the right ventricle, TAPVD and Bilateral Superior Vena Cava and no spleen. Treatment: modified BT shunt (6 days old) open heart surgery (3 months and 6 months), 1st stage Fontan (10 months). Further surgery planned. Current medication: warfarin, enanapril, frusemide, penicillin.

Heart disease >> Parents of children with congenital heart disease >> Child aged 4-5 >> Interview CH18 >> They felt very alone and unsupported for the first six months after their son was diagnosed and until the time of his first operation when they got he

Their son was diagnosed with mirror image, transposition of the great arteries, left sided valve atresia and pulmonary stenosis. Treatment: A BT Shunt at six months old, followed by the Stage 1 Glenn procedure at 4.5 yrs. Cardiac catheter operations every 2 yrs. Further surgery is planned. Current medication: aspirin.

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