Age at Interview:
Diagnosed during pregnancy (18 weeks). Parents marital status: Separated. Occupations: M-Full time Mum. No other children. The family do not live close by to a specialist hospital.
Brief outline:Thomas was diagnosed with Tricuspid Atresia, Transposition of the Great Arteries and Coarctation of the Aorta. Treatment: An arterial switch operation at 36 hrs old followed by a BT shunt at 5 months, a Kawashima at 33 months and a Fontan at age 7. Current medication: wafarin.
No we were very fortunate that I didn't, I didn't need to go back to work after I'd had Thomas. My husband was able to support us quite adequate, adequately. So, no, we didn't have any financial problems. Also I was helped by, at the time we had a social worker. She was there, she was there to support families of children with special needs and disabilities and she suggested that I might like to apply for a Disability Living Allowance for Thomas. Which hadn't occurred to me but she helped me out with the dreadful forms that you have to fill out and so I applied and I was granted Disability Living Allowance for him, which I did find helpful.
After which she said to me that I should also try to claim for Carers' Allowance, which I did and I was able to claim that as well. So that relieved, that relieved any financial burden that we may have had. I found it useful because we were having to make frequent trips to the hospital which of course is petrol and my husband did have to take time off work at which time he was doing contract work so obviously only getting paid for, for the hours that he worked. Also when you stay in hospital you do end up spending a lot of money: phone calls, food, it can become quite expensive no matter how much you can, you try to keep it under control. So yes that was, I found that, I found that useful.
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