Subject index - Patients, family and professional experience of health and illness... all in one place : Healthtalkonline

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The children :
The children

Background :
Background: Professor Tony Bailey

Road to discovery :
Early signs; developmental milestones
Early signs; behaviours and action
Getting a diagnosis; assessment and being told
Getting a diagnosis; referrals
Feelings about diagnosis
Thinking about labels

Everyday life :
Communication; understandings
Communication; relationships
Going out
Strategies for going out
Fears, anxieties, sensory issues and meltdowns
Special interests and routines
Eating and sleeping
Activities
Self help skills

Parents and their relationships :
Effect on parents; rewards
Effect on parents; health
Effect on parents; feeling like a bad parent
Effect on parents; worrying about the future
Effect on relationships
Siblings
Employment and finances

Changes over time :
Positive change over time
Growing up
Thinking ahead

Experiencing education :
Types of schooling
Difficulties in education; getting a statement
Difficulties in education; disliking school
Further education

Treatments :
Medical and dietary interventions
Therapies

Support :
Support groups
Respite care
Dealing with professionals
Causes
Factors that have helped
Information
Messages to parents

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Parents of children on the Autism Spectrum

Subject index

Rosie’s son, Sam, was originally diagnosed with dyspraxia and then with autism when he was five years old. He attends a special school which has a specialist autism unit which he enjoys.

Autism >> Parents of children on the Autism Spectrum >> Age 12-17 >> Karen - Interview 23 >> Nicole found the transition to secondary school very difficult and “mentally and physically” she fell to bits.

Karen’s old daughter was diagnosed with Asperger syndrome when she was 10 years old. She has since been diagnosed with Oppositional Defiance Disorder and her mother has removed her from school because appropriate support was not provided.

Autism >> Parents of children on the Autism Spectrum >> Age 18+ >> Carolann - Interview 36 >> Carolann thinks parents should “push hard for a statement.. it will have an enormous influence on the rest of your child’s life”.

Carolann’s daughter, Nita, was diagnosed with Asperger syndrome when she was 14. Nita has written a book about her experiences, had some unsuccessful experiences at university and is currently teaching herself Russian, Japanese, Spanish and Chinese.

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