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Parents of children on the Autism Spectrum
Forum
Resources & Information
Subject index
Credits
Full list of topics
The children :
The children
Background :
Background: Professor Tony Bailey
Road to discovery :
Early signs; developmental milestones
Early signs; behaviours and action
Getting a diagnosis; assessment and being told
Getting a diagnosis; referrals
Feelings about diagnosis
Thinking about labels
Everyday life :
Communication; understandings
Communication; relationships
Going out
Strategies for going out
Fears, anxieties, sensory issues and meltdowns
Special interests and routines
Eating and sleeping
Activities
Self help skills
Parents and their relationships :
Effect on parents; rewards
Effect on parents; health
Effect on parents; feeling like a bad parent
Effect on parents; worrying about the future
Effect on relationships
Siblings
Employment and finances
Changes over time :
Positive change over time
Growing up
Thinking ahead
Experiencing education :
Types of schooling
Difficulties in education; getting a statement
Difficulties in education; disliking school
Further education
Treatments :
Medical and dietary interventions
Therapies
Support :
Support groups
Respite care
Dealing with professionals
Causes
Factors that have helped
Information
Messages to parents
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Parents of children on the Autism Spectrum
Subject index
Clip
Autism
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Parents of children on the Autism Spectrum
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Age 18+
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Daryll - Interview 6
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Darryl ordered some books about Asperger syndrome and read bits to her daughter who was relieved that she “was not mad”.
Daryll’s daughter Tiffany was diagnosed with Asperger syndrome when she was 14 and is waiting for an agreement by social services to fund her social care during university.
Autism
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Parents of children on the Autism Spectrum
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Age 12-17
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Daniel - Interview 7
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Daniel describes how people constantly tell you how to look after your child.
Daniel’s son, Jonathan, was diagnosed with autism in association with hyperlexia when he was aged 4. Daniel has home-schooled his son for the past four years.
Autism
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Parents of children on the Autism Spectrum
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Age 6-11
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Tony and Alison - Interview 28
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Alison and Tony noticed how their son’s development differed to that of his sister.
Tony and Alison’s son, Nathan, was diagnosed with autism three years ago. He is currently in a mainstream primary school and will move to a special school for his secondary education.
Autism
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Parents of children on the Autism Spectrum
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Age 6-11
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Tony and Alison - Interview 28
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Alison and Tony’s son would fly down the length of the living room and bang his head on the door.
Tony and Alison’s son, Nathan, was diagnosed with autism three years ago. He is currently in a mainstream primary school and will move to a special school for his secondary education.
Autism
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Parents of children on the Autism Spectrum
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Age under 6
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Amanda - Interview 29
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Amanda’s son recites sections from his favourite Disney DVD perfectly.
Amanda’s two children have both been diagnosed with autism. They attend a special school for children with moderate learning difficulties which they both enjoy.
Autism
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Parents of children on the Autism Spectrum
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Age 6-11
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Bobbi - Interview 30
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Bobbi found the process of getting a diagnosis ‘incredibly frustrating’.
Bobbi’s younger son, Charlie, was diagnosed with autism when he was five. He attends a local primary school with support and is getting on very well.
Autism
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Parents of children on the Autism Spectrum
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Age 6-11
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Tony and Alison - Interview 28
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Alison and Tony had gone to the doctor’s on several occasions but were told not to worry; their child would ‘be all right’.
Tony and Alison’s son, Nathan, was diagnosed with autism three years ago. He is currently in a mainstream primary school and will move to a special school for his secondary education.
Autism
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Parents of children on the Autism Spectrum
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Age 6-11
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Sandy - Interview 1
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Sandy thought her son had been practising in secret when he walked without crawling.
Sandy’s older son, Joseph, aged 8, was diagnosed with autism one month before his second birthday. Her younger son, Adam, aged 6, was diagnosed with autism aged eighteen months. Both boys attend a special school which they enjoy.
Autism
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Parents of children on the Autism Spectrum
>>
Age 18+
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Tracy - Interview 13
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Tracy describes her experience of getting her daughter’s diagnosis.
Tracy’s daughter, Nicola, was diagnosed with autism when she was six years old. Nicola is currently at a college for further education and will start working at the local hospital radio station when she finishes her course.
Autism
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Parents of children on the Autism Spectrum
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Age under 6
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Caron - Interview 15
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Caron began to worry when her son was about six months old and did not smile at people.
Caron’s son, Leo, was diagnosed with autism when he was three. He attends a mainstream primary school but Caron worries that he is not receiving appropriate support.
Autism
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Parents of children on the Autism Spectrum
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Age 12-17
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Catherine - Interview 16
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Catherine’s daughters understand spoken language better when it’s combined with signs.
Catherine and her husband have two teenaged daughters, both of whom have been diagnosed with autism. Catherine has homeschooled her daughters using an ABA programme for several years.
Autism
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Parents of children on the Autism Spectrum
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Age 18+
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Christine - Interview 20
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Christine’s son didn’t cry and had delayed speech but she thinks it’s easy to look back now and see that there was something different about him.
Christine’s son, Brian, was diagnosed with Asperger syndrome four years ago after being wrongly diagnosed with schizophrenia when he was 14. He lives at home now after years in a residential home and attends an autism day centre during the week.
Autism
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Parents of children on the Autism Spectrum
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Age 6-11
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Helen and Jason - Interview 12
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Josh
Helen and Jason’s older son,Joshua, was diagnosed with Asperger syndrome when he was five years old. He attends the local mainstream primary school but his parents are worried about his education and would like to find specialist provision for him.
Autism
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Parents of children on the Autism Spectrum
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Age 6-11
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Helen and Jason - Interview 12
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Helen and Jason’s son’s speech was delayed but he talked in sentences straight away.
Helen and Jason’s older son,Joshua, was diagnosed with Asperger syndrome when he was five years old. He attends the local mainstream primary school but his parents are worried about his education and would like to find specialist provision for him.
Autism
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Parents of children on the Autism Spectrum
>>
Age under 6
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Nicki and Mark - Interview 14
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Nicki and Mark experienced a straightforward process of getting a diagnosis after nursery staff suggested their son was displaying autistic tendencies
Nicki and Mark’s son, Tyler, was diagnosed with autism when he was four years old. He attends a special school and they are delighted with his progress.
Autism
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Parents of children on the Autism Spectrum
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Age 6-11
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Mary-Anne - Interview 25
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Mary-Ann describes how Arthur is very verbal and will talk and talk.
Mary-Anne’s son, Arthur, was diagnosed with Asperger syndrome, Tourettes syndrome and elements of ADHD and OCD three years ago. He attends a special school which he enjoys.
Autism
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Parents of children on the Autism Spectrum
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Age 12-17
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Joy - Interview 48
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Joy describes the first significant event on a train journey when her son became very distressed by a noise she could not hear.
Joy’s son was diagnosed with Asperger syndrome when he was six years old. He attends a mainstream secondary school and is getting on very well.
Autism
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Parents of children on the Autism Spectrum
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Age 6-11
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Jeanine - Interview 46
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Jeanine “intuitively I felt there was something that wasn’t quite as it should be but I really couldn’t put my finger on it”.
Jeanine’s son was diagnosed with autism when he was five years old. He attends a mainstream primary school with support and has made good progress at school.
Autism
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Parents of children on the Autism Spectrum
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Age 6-11
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Sandy - Interview 1
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Joseph and Adam
Sandy’s older son, Joseph, aged 8, was diagnosed with autism one month before his second birthday. Her younger son, Adam, aged 6, was diagnosed with autism aged eighteen months. Both boys attend a special school which they enjoy.
Autism
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Parents of children on the Autism Spectrum
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Age 12-17
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Paula - Interview 5
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Paula describes a part of the process of getting her sons diagnosed which went on for several years.
Paula’s older son Alex was diagnosed with Asperger syndrome two years ago and her younger son David has been diagnosed with ADD, Oppositional Defiance Disorder, agitated depression, speech dyspraxia and Asperger syndrome over the years. Both boys attend a mainstream secondary school and Paula is still trying to organize appropriate support for David.
Autism
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Parents of children on the Autism Spectrum
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Age 6-11
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Sandy - Interview 1
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Sandy read a leaflet and found that Joseph had about seven of the eight autism traits listed so was prepared to receive the diagnosis.
Sandy’s older son, Joseph, aged 8, was diagnosed with autism one month before his second birthday. Her younger son, Adam, aged 6, was diagnosed with autism aged eighteen months. Both boys attend a special school which they enjoy.
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