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Parents of children on the Autism Spectrum
Forum
Resources & Information
Subject index
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Full list of topics
The children :
The children
Background :
Background: Professor Tony Bailey
Road to discovery :
Early signs; developmental milestones
Early signs; behaviours and action
Getting a diagnosis; assessment and being told
Getting a diagnosis; referrals
Feelings about diagnosis
Thinking about labels
Everyday life :
Communication; understandings
Communication; relationships
Going out
Strategies for going out
Fears, anxieties, sensory issues and meltdowns
Special interests and routines
Eating and sleeping
Activities
Self help skills
Parents and their relationships :
Effect on parents; rewards
Effect on parents; health
Effect on parents; feeling like a bad parent
Effect on parents; worrying about the future
Effect on relationships
Siblings
Employment and finances
Changes over time :
Positive change over time
Growing up
Thinking ahead
Experiencing education :
Types of schooling
Difficulties in education; getting a statement
Difficulties in education; disliking school
Further education
Treatments :
Medical and dietary interventions
Therapies
Support :
Support groups
Respite care
Dealing with professionals
Causes
Factors that have helped
Information
Messages to parents
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Parents of children on the Autism Spectrum
Subject index
Clip
Autism
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Parents of children on the Autism Spectrum
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Age 12-17
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Jane - Interview 27
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Jane describes how her son was very good at maths from an early age.
Jane’s son, John, was diagnosed with Asperger syndrome when he was 9 years old. He is at a mainstream secondary school and hopes to study augmentation, artificial limbs and electronics at university.
Autism
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Parents of children on the Autism Spectrum
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Age 18+
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Jacqui - Interview 31
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Jacqui has created extra work for herself by teaching Ben to make his own breakfast.
Five of Jacqui’s children are on the autistic spectrum and, as they have grown older, Jacqui has found that adult services have few resources and there is no support to help ease her children into employment.
Autism
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Parents of children on the Autism Spectrum
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Age 6-11
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Kirsten - Interview 43
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Kirsten’s son wears coloured glasses to help his concentration.
Kirsten’s middle child, Andrew, was diagnosed with autism when he was two. He attends a mainstream primary school in the mornings and does a combination of ABA and DIR therapies in the afternoons.
Autism
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Parents of children on the Autism Spectrum
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Age 12-17
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Rosie - Interview 18
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Rosie wants her son to eat properly for social reasons and he would rather eat a lot of one thing rather than various foods.
Rosie’s son, Sam, was originally diagnosed with dyspraxia and then with autism when he was five years old. He attends a special school which has a specialist autism unit which he enjoys.
Autism
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Parents of children on the Autism Spectrum
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Age 12-17
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Jane - Interview 27
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Jane finds her son’s ability to argue so effectively challenging.
Jane’s son, John, was diagnosed with Asperger syndrome when he was 9 years old. He is at a mainstream secondary school and hopes to study augmentation, artificial limbs and electronics at university.
Autism
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Parents of children on the Autism Spectrum
>>
Age 12-17
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Jane - Interview 27
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Jane’s son understands nuclear fission but cannot see dirt on a plate he is washing up. Attempts to hurry him stress him all the more.
Jane’s son, John, was diagnosed with Asperger syndrome when he was 9 years old. He is at a mainstream secondary school and hopes to study augmentation, artificial limbs and electronics at university.
Autism
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Parents of children on the Autism Spectrum
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Age 18+
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Jacqui - Interview 31
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Jacqui talks about the difficulties that arise if she tells her son to “get a little bit of toilet paper”.
Five of Jacqui’s children are on the autistic spectrum and, as they have grown older, Jacqui has found that adult services have few resources and there is no support to help ease her children into employment.
Autism
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Parents of children on the Autism Spectrum
>>
Age 12-17
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Rosie - Interview 18
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Rosie’s son doesn’t like it when she goes out in the evening.
Rosie’s son, Sam, was originally diagnosed with dyspraxia and then with autism when he was five years old. He attends a special school which has a specialist autism unit which he enjoys.
Autism
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Parents of children on the Autism Spectrum
>>
Age 12-17
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Rosie - Interview 18
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Rosie’s son has no idea about the difference between 1p and £1000 and if he does seem to learn it, he forgets the next day.
Rosie’s son, Sam, was originally diagnosed with dyspraxia and then with autism when he was five years old. He attends a special school which has a specialist autism unit which he enjoys.
Autism
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Parents of children on the Autism Spectrum
>>
Age 18+
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Tracy - Interview 13
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Tracy has found getting her daughter to shower and to change her sanitary towel can become a “bone of contention”.
Tracy’s daughter, Nicola, was diagnosed with autism when she was six years old. Nicola is currently at a college for further education and will start working at the local hospital radio station when she finishes her course.
Autism
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Parents of children on the Autism Spectrum
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Age 18+
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Christine - Interview 20
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Brian chooses what to wear by whether the sun is in or out, not according to the temperature; he also can't get the hang of the microwave.
Christine’s son, Brian, was diagnosed with Asperger syndrome four years ago after being wrongly diagnosed with schizophrenia when he was 14. He lives at home now after years in a residential home and attends an autism day centre during the week.
Autism
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Parents of children on the Autism Spectrum
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Age 18+
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John and Lynne - Interview 47
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John and Lynn's son Gavin can do most things like shave, wash and dress, but unless somebody “presses the button” it does not happen.
John and Lynne’s younger son, Gavin, was diagnosed with autism when he was 14 years old. He lives in a residential facility attached to his old school and John and Lynne feel he has had excellent support over the years.
Topic
Autism
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Parents of children on the Autism Spectrum
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Self help skills
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Self help skills
Self help skills
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Parents of children on the Autism Spectrum
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Self help skills
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Self help skills
Self help skills
Autism
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Parents of children on the Autism Spectrum
>>
Age 18+
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Daryll - Interview 6
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Daryll describes how Tiffany was going to warm up an old chicken from the fridge and does not “do due by dates”.
Daryll’s daughter Tiffany was diagnosed with Asperger syndrome when she was 14 and is waiting for an agreement by social services to fund her social care during university.
Autism
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Parents of children on the Autism Spectrum
>>
Age 18+
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Daryll - Interview 6
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Daryll describes how Tiffany would need her own space at university and she would need someone to check her fridge, check that her laundry is done and
Daryll’s daughter Tiffany was diagnosed with Asperger syndrome when she was 14 and is waiting for an agreement by social services to fund her social care during university.
Autism
>>
Parents of children on the Autism Spectrum
>>
Age 18+
>>
Jacqui - Interview 31
>>
Jacqui has created extra work for herself by teaching Ben to make his own breakfast.
Five of Jacqui’s children are on the autistic spectrum and, as they have grown older, Jacqui has found that adult services have few resources and there is no support to help ease her children into employment.
Autism
>>
Parents of children on the Autism Spectrum
>>
Age 18+
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Carolann - Interview 36
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Carolann felt vindicated on receiving the diagnosis because she was not “mad, bad or sad” and neither was her daughter.
Carolann’s daughter, Nita, was diagnosed with Asperger syndrome when she was 14. Nita has written a book about her experiences, had some unsuccessful experiences at university and is currently teaching herself Russian, Japanese, Spanish and Chinese.
Autism
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Parents of children on the Autism Spectrum
>>
Age 6-11
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Tony and Alison - Interview 28
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Tony and Alison discuss how teaching Nathan geography or French is no use to him but learning to work out his change and what bus to get on to go to t
Tony and Alison’s son, Nathan, was diagnosed with autism three years ago. He is currently in a mainstream primary school and will move to a special school for his secondary education.
Autism
>>
Parents of children on the Autism Spectrum
>>
Age 6-11
>>
Tony and Alison - Interview 28
>>
Tony and Alison discuss how teaching Nathan geography or French is no use to him but learning to work out his change and what bus to get on to go to t
Tony and Alison’s son, Nathan, was diagnosed with autism three years ago. He is currently in a mainstream primary school and will move to a special school for his secondary education.
Autism
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Parents of children on the Autism Spectrum
>>
Age 6-11
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Liz - Interview 2
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Liz thinks that the education system is too inflexible for children one the spectrum.
Liz’s son, Jonas, aged 11, has been diagnosed with epilepsy, ADHD and Asperger syndrome and Raphe, the youngest son, has Downs Syndrome. Jonas attends the local mainstream primary school but Liz is worried about the move to secondary school.
Autism
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Parents of children on the Autism Spectrum
>>
Age 12-17
>>
Jane - Interview 27
>>
Jane’s son got into difficulties at school when the teacher began to find him precocious.
Jane’s son, John, was diagnosed with Asperger syndrome when he was 9 years old. He is at a mainstream secondary school and hopes to study augmentation, artificial limbs and electronics at university.
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