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Parents of children on the Autism Spectrum
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Resources & Information
Subject index
Credits
Full list of topics
The children :
The children
Background :
Background: Professor Tony Bailey
Road to discovery :
Early signs; developmental milestones
Early signs; behaviours and action
Getting a diagnosis; assessment and being told
Getting a diagnosis; referrals
Feelings about diagnosis
Thinking about labels
Everyday life :
Communication; understandings
Communication; relationships
Going out
Strategies for going out
Fears, anxieties, sensory issues and meltdowns
Special interests and routines
Eating and sleeping
Activities
Self help skills
Parents and their relationships :
Effect on parents; rewards
Effect on parents; health
Effect on parents; feeling like a bad parent
Effect on parents; worrying about the future
Effect on relationships
Siblings
Employment and finances
Changes over time :
Positive change over time
Growing up
Thinking ahead
Experiencing education :
Types of schooling
Difficulties in education; getting a statement
Difficulties in education; disliking school
Further education
Treatments :
Medical and dietary interventions
Therapies
Support :
Support groups
Respite care
Dealing with professionals
Causes
Factors that have helped
Information
Messages to parents
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Parents of children on the Autism Spectrum
Subject index
Topic
Autism
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Parents of children on the Autism Spectrum
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Early signs; behaviours and action
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Early signs; behaviours and action
Early signs; behaviours and action
Autism
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Parents of children on the Autism Spectrum
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Early signs; behaviours and action
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Early signs; behaviours and action
Early signs; behaviours and action
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Parents of children on the Autism Spectrum
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Early signs; behaviours and action
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Early signs; behaviours and action
Early signs; behaviours and action
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Parents of children on the Autism Spectrum
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Early signs; behaviours and action
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Early signs; behaviours and action
Early signs; behaviours and action
Clip
Autism
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Parents of children on the Autism Spectrum
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Age 6-11
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Rachel - Interview 8
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Rachel’s husband can no longer look at play dough after their son spent hours making play dough animals.
Rachel’s sons, Thomas and Matthew, have both been diagnosed with Asperger syndrome. They both attend a mainstream primary school with support.
Autism
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Parents of children on the Autism Spectrum
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Age under 6
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Caron - Interview 15
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Caron began to worry when her son was about six months old and did not smile at people.
Caron’s son, Leo, was diagnosed with autism when he was three. He attends a mainstream primary school but Caron worries that he is not receiving appropriate support.
Autism
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Parents of children on the Autism Spectrum
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Age 6-11
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Sandy - Interview 1
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Sandy thought her son had been practising in secret when he walked without crawling.
Sandy’s older son, Joseph, aged 8, was diagnosed with autism one month before his second birthday. Her younger son, Adam, aged 6, was diagnosed with autism aged eighteen months. Both boys attend a special school which they enjoy.
Autism
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Parents of children on the Autism Spectrum
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Age 6-11
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Helen and Jason - Interview 12
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Helen and Jason’s son’s speech was delayed but he talked in sentences straight away.
Helen and Jason’s older son,Joshua, was diagnosed with Asperger syndrome when he was five years old. He attends the local mainstream primary school but his parents are worried about his education and would like to find specialist provision for him.
Autism
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Parents of children on the Autism Spectrum
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Age 12-17
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Dot - Interview 9
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Dot’s son hated being cuddled and was tireless at night.
Dot’s son Joe was diagnosed with Asperger syndrome when he was 7 years old. He attends a specialist Asperger Unit which is on the site of a mainstream secondary school and he is getting on very well.
Autism
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Parents of children on the Autism Spectrum
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Age 12-17
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Rosie - Interview 18
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Rosie’s son had a fixation about eating anything and ended up in hospital after eating glass.
Rosie’s son, Sam, was originally diagnosed with dyspraxia and then with autism when he was five years old. He attends a special school which has a specialist autism unit which he enjoys.
Autism
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Parents of children on the Autism Spectrum
>>
Early signs; developmental milestones
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Early signs; developmental milestones
Early signs; developmental milestones
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Parents of children on the Autism Spectrum
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Early signs; developmental milestones
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Early signs; developmental milestones
Early signs; developmental milestones
Autism
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Parents of children on the Autism Spectrum
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Age 12-17
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Jane - Interview 27
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Jane describes how her son was very good at maths from an early age.
Jane’s son, John, was diagnosed with Asperger syndrome when he was 9 years old. He is at a mainstream secondary school and hopes to study augmentation, artificial limbs and electronics at university.
Autism
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Parents of children on the Autism Spectrum
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Age 6-11
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Tony and Alison - Interview 28
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Alison and Tony’s son would fly down the length of the living room and bang his head on the door.
Tony and Alison’s son, Nathan, was diagnosed with autism three years ago. He is currently in a mainstream primary school and will move to a special school for his secondary education.
Autism
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Parents of children on the Autism Spectrum
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Age 12-17
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Christine - Interview 21
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When Christine was pregnant she worried because her baby was very quiet and it felt 'constricted' in some way.
Christine’s daughter, Elisabeth, was diagnosed with autistic spectrum disorder complex, ADHD, separation anxiety, Oppositional Defiance Disorder and learning difficulties. She is currently out of school because of the lack of effective support.
Autism
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Parents of children on the Autism Spectrum
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Age 18+
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John and Lynne - Interview 47
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Lynne describes how Gavin would “do the opposite to what you would expect” and had lengthy screaming fits.
John and Lynne’s younger son, Gavin, was diagnosed with autism when he was 14 years old. He lives in a residential facility attached to his old school and John and Lynne feel he has had excellent support over the years.
Autism
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Parents of children on the Autism Spectrum
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Age 12-17
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Joy - Interview 48
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Joy describes the first significant event on a train journey when her son became very distressed by a noise she could not hear.
Joy’s son was diagnosed with Asperger syndrome when he was six years old. He attends a mainstream secondary school and is getting on very well.
Autism
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Parents of children on the Autism Spectrum
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Age 12-17
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Christine - Interview 21
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Christine’s daughter had a particular look from when she was a baby.
Christine’s daughter, Elisabeth, was diagnosed with autistic spectrum disorder complex, ADHD, separation anxiety, Oppositional Defiance Disorder and learning difficulties. She is currently out of school because of the lack of effective support.
Autism
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Parents of children on the Autism Spectrum
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Age 6-11
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Jeanine - Interview 46
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Jeanine “intuitively I felt there was something that wasn’t quite as it should be but I really couldn’t put my finger on it”.
Jeanine’s son was diagnosed with autism when he was five years old. He attends a mainstream primary school with support and has made good progress at school.
Autism
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Parents of children on the Autism Spectrum
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Age 12-17
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Karen - Interview 23
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Karen gradually noticed her daughter was developing differently.
Karen’s old daughter was diagnosed with Asperger syndrome when she was 10 years old. She has since been diagnosed with Oppositional Defiance Disorder and her mother has removed her from school because appropriate support was not provided.
Autism
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Parents of children on the Autism Spectrum
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Age 12-17
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Karen - Interview 23
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Karen thinks there is a genetic component to autism and her daughter is “aspie through and through”.
Karen’s old daughter was diagnosed with Asperger syndrome when she was 10 years old. She has since been diagnosed with Oppositional Defiance Disorder and her mother has removed her from school because appropriate support was not provided.
Autism
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Parents of children on the Autism Spectrum
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Age under 6
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Amanda - Interview 29
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Amanda’s son recites sections from his favourite Disney DVD perfectly.
Amanda’s two children have both been diagnosed with autism. They attend a special school for children with moderate learning difficulties which they both enjoy.
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Parents of children on the Autism Spectrum
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Early signs; developmental milestones
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Early signs; developmental milestones
Early signs; developmental milestones
Autism
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Parents of children on the Autism Spectrum
>>
Early signs; developmental milestones
>>
Early signs; developmental milestones
Early signs; developmental milestones
Autism
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Parents of children on the Autism Spectrum
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Age 6-11
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Tony and Alison - Interview 28
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Alison got T-shirts printed saying “I’m not naughty, I’m autistic” to make going out easier.
Tony and Alison’s son, Nathan, was diagnosed with autism three years ago. He is currently in a mainstream primary school and will move to a special school for his secondary education.
Autism
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Parents of children on the Autism Spectrum
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Age 6-11
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Nick and Vikki - Interview 34
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Nick and Vikki find their son’s tantrum’s difficult to control now he has grown older.
Nick and Vikki’s younger son, Peter, was diagnosed with Asperger syndrome when he was five years old. He attends a specialist resourced provision attached to a mainstream primary school which he enjoys.
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