Subject index - Patients, family and professional experience of health and illness... all in one place : Healthtalkonline

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The children :
The children

Background :
Background: Professor Tony Bailey

Road to discovery :
Early signs; developmental milestones
Early signs; behaviours and action
Getting a diagnosis; assessment and being told
Getting a diagnosis; referrals
Feelings about diagnosis
Thinking about labels

Everyday life :
Communication; understandings
Communication; relationships
Going out
Strategies for going out
Fears, anxieties, sensory issues and meltdowns
Special interests and routines
Eating and sleeping
Activities
Self help skills

Parents and their relationships :
Effect on parents; rewards
Effect on parents; health
Effect on parents; feeling like a bad parent
Effect on parents; worrying about the future
Effect on relationships
Siblings
Employment and finances

Changes over time :
Positive change over time
Growing up
Thinking ahead

Experiencing education :
Types of schooling
Difficulties in education; getting a statement
Difficulties in education; disliking school
Further education

Treatments :
Medical and dietary interventions
Therapies

Support :
Support groups
Respite care
Dealing with professionals
Causes
Factors that have helped
Information
Messages to parents

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Parents of children on the Autism Spectrum

Subject index

Dot’s son Joe was diagnosed with Asperger syndrome when he was 7 years old. He attends a specialist Asperger Unit which is on the site of a mainstream secondary school and he is getting on very well.

Autism >> Parents of children on the Autism Spectrum >> Age 12-17 >> Paula - Interview 5 >> Paula felt “incredible relief” to get the diagnosis as she had been questioning her parenting ability.

Paula’s older son Alex was diagnosed with Asperger syndrome two years ago and her younger son David has been diagnosed with ADD, Oppositional Defiance Disorder, agitated depression, speech dyspraxia and Asperger syndrome over the years. Both boys attend a mainstream secondary school and Paula is still trying to organize appropriate support for David.

Autism >> Parents of children on the Autism Spectrum >> Age 6-11 >> Mary-Anne - Interview 25 >> Mary-Ann felt devastated when her son was diagnosed but came to recognise that what mattered most was for him to be happy.

Mary-Anne’s son, Arthur, was diagnosed with Asperger syndrome, Tourettes syndrome and elements of ADHD and OCD three years ago. He attends a special school which he enjoys.

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