Subject index - Patients, family and professional experience of health and illness... all in one place : Healthtalkonline

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The children :
The children

Background :
Background: Professor Tony Bailey

Road to discovery :
Early signs; developmental milestones
Early signs; behaviours and action
Getting a diagnosis; assessment and being told
Getting a diagnosis; referrals
Feelings about diagnosis
Thinking about labels

Everyday life :
Communication; understandings
Communication; relationships
Going out
Strategies for going out
Fears, anxieties, sensory issues and meltdowns
Special interests and routines
Eating and sleeping
Activities
Self help skills

Parents and their relationships :
Effect on parents; rewards
Effect on parents; health
Effect on parents; feeling like a bad parent
Effect on parents; worrying about the future
Effect on relationships
Siblings
Employment and finances

Changes over time :
Positive change over time
Growing up
Thinking ahead

Experiencing education :
Types of schooling
Difficulties in education; getting a statement
Difficulties in education; disliking school
Further education

Treatments :
Medical and dietary interventions
Therapies

Support :
Support groups
Respite care
Dealing with professionals
Causes
Factors that have helped
Information
Messages to parents

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Parents of children on the Autism Spectrum

Subject index

Rachel’s sons, Thomas and Matthew, have both been diagnosed with Asperger syndrome. They both attend a mainstream primary school with support.

Autism >> Parents of children on the Autism Spectrum >> Age 18+ >> Jacqui - Interview 31 >> Jacqui thinks a lot of the time professionals don’t want parents to tell them things; “you have to feed their egos”.

Five of Jacqui’s children are on the autistic spectrum and, as they have grown older, Jacqui has found that adult services have few resources and there is no support to help ease her children into employment.

Autism >> Parents of children on the Autism Spectrum >> Age 6-11 >> Jeanine - Interview 46 >> Jeanine feels that there should be more investment in her son to help him to access the curriculum.

Jeanine’s son was diagnosed with autism when he was five years old. He attends a mainstream primary school with support and has made good progress at school.

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