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Parents of children on the Autism Spectrum
Forum
Resources & Information
Subject index
Credits
Full list of topics
The children :
The children
Background :
Background: Professor Tony Bailey
Road to discovery :
Early signs; developmental milestones
Early signs; behaviours and action
Getting a diagnosis; assessment and being told
Getting a diagnosis; referrals
Feelings about diagnosis
Thinking about labels
Everyday life :
Communication; understandings
Communication; relationships
Going out
Strategies for going out
Fears, anxieties, sensory issues and meltdowns
Special interests and routines
Eating and sleeping
Activities
Self help skills
Parents and their relationships :
Effect on parents; rewards
Effect on parents; health
Effect on parents; feeling like a bad parent
Effect on parents; worrying about the future
Effect on relationships
Siblings
Employment and finances
Changes over time :
Positive change over time
Growing up
Thinking ahead
Experiencing education :
Types of schooling
Difficulties in education; getting a statement
Difficulties in education; disliking school
Further education
Treatments :
Medical and dietary interventions
Therapies
Support :
Support groups
Respite care
Dealing with professionals
Causes
Factors that have helped
Information
Messages to parents
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Parents of children on the Autism Spectrum
Subject index
Clip
Autism
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Parents of children on the Autism Spectrum
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Age under 6
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Caron - Interview 15
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Caron describes the two different groups she goes to.
Caron’s son, Leo, was diagnosed with autism when he was three. He attends a mainstream primary school but Caron worries that he is not receiving appropriate support.
Autism
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Parents of children on the Autism Spectrum
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Age 12-17
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Mike - Interview 22
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Mike’s daughter used to go to a friend’s house to do her homework and couldn’t bring friends home in case her brother attacked them.
Mike’s youngest son, Andrew, was diagnosed with autism when he was three years old. He moved to a specialist residential school a year ago, after spending a year excluded from school because of challenging behaviour.
Autism
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Parents of children on the Autism Spectrum
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Age 18+
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Carolann - Interview 36
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Carolann visited over twenty professionals before her daughter was diagnosed with Asperger syndrome.
Carolann’s daughter, Nita, was diagnosed with Asperger syndrome when she was 14. Nita has written a book about her experiences, had some unsuccessful experiences at university and is currently teaching herself Russian, Japanese, Spanish and Chinese.
Autism
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Parents of children on the Autism Spectrum
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Age 18+
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Carolann - Interview 36
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Carolann describes how her friends from her ‘old life’ faded away because they had no point of contact.
Carolann’s daughter, Nita, was diagnosed with Asperger syndrome when she was 14. Nita has written a book about her experiences, had some unsuccessful experiences at university and is currently teaching herself Russian, Japanese, Spanish and Chinese.
Autism
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Parents of children on the Autism Spectrum
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Age 6-11
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Bobbi - Interview 30
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Bobbi’s friends are “spread all over the place” but she is in regular contact through the internet.
Bobbi’s younger son, Charlie, was diagnosed with autism when he was five. He attends a local primary school with support and is getting on very well.
Autism
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Parents of children on the Autism Spectrum
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Age 12-17
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Dot - Interview 9
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Dot felt the diagnosis would make everyone take her seriously at last and when she got home phoned everyone to tell them the news.
Dot’s son Joe was diagnosed with Asperger syndrome when he was 7 years old. He attends a specialist Asperger Unit which is on the site of a mainstream secondary school and he is getting on very well.
Autism
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Parents of children on the Autism Spectrum
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Age 6-11
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Nuala - Interview 56
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Nuala’s son does not make friendships easily.
Nuala’s son, Robert, was diagnosed with Asperger syndrome when he was eight years old. He attends a mainstream primary school with support and is now much happier and settled.
Autism
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Parents of children on the Autism Spectrum
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Age 18+
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Carolann - Interview 36
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Carolann’s daughter runs out of “tricks, ploys and schemes” after a few hours in the company of neurotypical people.
Carolann’s daughter, Nita, was diagnosed with Asperger syndrome when she was 14. Nita has written a book about her experiences, had some unsuccessful experiences at university and is currently teaching herself Russian, Japanese, Spanish and Chinese.
Autism
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Parents of children on the Autism Spectrum
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Age 18+
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Daryll - Interview 6
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Daryll describes how Tiffany will over-react to events with friends.
Daryll’s daughter Tiffany was diagnosed with Asperger syndrome when she was 14 and is waiting for an agreement by social services to fund her social care during university.
Autism
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Parents of children on the Autism Spectrum
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Age 6-11
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Rachel - Interview 8
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Rachel thinks her son will have a hard time with puberty because he will be bothered by bodily changes.
Rachel’s sons, Thomas and Matthew, have both been diagnosed with Asperger syndrome. They both attend a mainstream primary school with support.
Autism
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Parents of children on the Autism Spectrum
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Age 12-17
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Karen - Interview 23
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Karen gradually noticed her daughter was developing differently.
Karen’s old daughter was diagnosed with Asperger syndrome when she was 10 years old. She has since been diagnosed with Oppositional Defiance Disorder and her mother has removed her from school because appropriate support was not provided.
Autism
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Parents of children on the Autism Spectrum
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Age 12-17
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Karen - Interview 23
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Karen feels judged to be the worlds worst parent and talks about the effect of her experiences on her life.
Karen’s old daughter was diagnosed with Asperger syndrome when she was 10 years old. She has since been diagnosed with Oppositional Defiance Disorder and her mother has removed her from school because appropriate support was not provided.
Autism
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Parents of children on the Autism Spectrum
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Age 6-11
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Mary-Anne - Interview 25
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Mary-Ann thinks it is important that people realise that Arthur does not always recognise people, but it does not mean he does not like them.
Mary-Anne’s son, Arthur, was diagnosed with Asperger syndrome, Tourettes syndrome and elements of ADHD and OCD three years ago. He attends a special school which he enjoys.
Autism
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Parents of children on the Autism Spectrum
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Age 18+
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Diana - Interview 33
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Diana describes the process of her daughter moving into her own flat.
Diana’s daughter, Vicky, 37, was diagnosed with Asperger syndrome when she was 33 years old. Vicky lives independently and spends the weekends with her parents.
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