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Parents of children on the Autism Spectrum
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Full list of topics
The children :
The children
Background :
Background: Professor Tony Bailey
Road to discovery :
Early signs; developmental milestones
Early signs; behaviours and action
Getting a diagnosis; assessment and being told
Getting a diagnosis; referrals
Feelings about diagnosis
Thinking about labels
Everyday life :
Communication; understandings
Communication; relationships
Going out
Strategies for going out
Fears, anxieties, sensory issues and meltdowns
Special interests and routines
Eating and sleeping
Activities
Self help skills
Parents and their relationships :
Effect on parents; rewards
Effect on parents; health
Effect on parents; feeling like a bad parent
Effect on parents; worrying about the future
Effect on relationships
Siblings
Employment and finances
Changes over time :
Positive change over time
Growing up
Thinking ahead
Experiencing education :
Types of schooling
Difficulties in education; getting a statement
Difficulties in education; disliking school
Further education
Treatments :
Medical and dietary interventions
Therapies
Support :
Support groups
Respite care
Dealing with professionals
Causes
Factors that have helped
Information
Messages to parents
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Parents of children on the Autism Spectrum
Subject index
Clip
Autism
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Parents of children on the Autism Spectrum
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Age under 6
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Amanda - Interview 29
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Amanda describes being exhausted by “being on high alert all the time”.
Amanda’s two children have both been diagnosed with autism. They attend a special school for children with moderate learning difficulties which they both enjoy.
Autism
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Parents of children on the Autism Spectrum
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Age 18+
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Tracy - Interview 13
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Tracy thinks she and her husband have lost their identities a little although they are strong as a couple.
Tracy’s daughter, Nicola, was diagnosed with autism when she was six years old. Nicola is currently at a college for further education and will start working at the local hospital radio station when she finishes her course.
Autism
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Parents of children on the Autism Spectrum
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Age 12-17
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Mike - Interview 22
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Mike describes how “you can’t relax in your own home” because his son is on the go all the time.
Mike’s youngest son, Andrew, was diagnosed with autism when he was three years old. He moved to a specialist residential school a year ago, after spending a year excluded from school because of challenging behaviour.
Autism
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Parents of children on the Autism Spectrum
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Age 6-11
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Liz - Interview 2
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Liz talks about having to fight for everything constantly and relies on antidepressants to keep her stable.
Liz’s son, Jonas, aged 11, has been diagnosed with epilepsy, ADHD and Asperger syndrome and Raphe, the youngest son, has Downs Syndrome. Jonas attends the local mainstream primary school but Liz is worried about the move to secondary school.
Autism
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Parents of children on the Autism Spectrum
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Age 12-17
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Jane - Interview 27
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Jane: “the loss of dignity of saying I can’t cope with this any more is soul destroying”.
Jane’s son, John, was diagnosed with Asperger syndrome when he was 9 years old. He is at a mainstream secondary school and hopes to study augmentation, artificial limbs and electronics at university.
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