Subject index - Patients, family and professional experience of health and illness... all in one place : Healthtalkonline

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The children :
The children

Background :
Background: Professor Tony Bailey

Road to discovery :
Early signs; developmental milestones
Early signs; behaviours and action
Getting a diagnosis; assessment and being told
Getting a diagnosis; referrals
Feelings about diagnosis
Thinking about labels

Everyday life :
Communication; understandings
Communication; relationships
Going out
Strategies for going out
Fears, anxieties, sensory issues and meltdowns
Special interests and routines
Eating and sleeping
Activities
Self help skills

Parents and their relationships :
Effect on parents; rewards
Effect on parents; health
Effect on parents; feeling like a bad parent
Effect on parents; worrying about the future
Effect on relationships
Siblings
Employment and finances

Changes over time :
Positive change over time
Growing up
Thinking ahead

Experiencing education :
Types of schooling
Difficulties in education; getting a statement
Difficulties in education; disliking school
Further education

Treatments :
Medical and dietary interventions
Therapies

Support :
Support groups
Respite care
Dealing with professionals
Causes
Factors that have helped
Information
Messages to parents

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Parents of children on the Autism Spectrum

Subject index

Rachel’s sons, Thomas and Matthew, have both been diagnosed with Asperger syndrome. They both attend a mainstream primary school with support.

Autism >> Parents of children on the Autism Spectrum >> Age 6-11 >> Katrina - Interview 11 >> Katrina says the experience has “physically, mentally, emotionally completely consumed” her.

Katrina’s son, Callum was diagnosed with atypical autism when he was four years old. Callum has been home schooled for the past couple of years after negative experiences in the education system. He is having cognitive behaviour therapy to help him overcome his fears and anxieties.

Autism >> Parents of children on the Autism Spectrum >> Age 12-17 >> Jane - Interview 27 >> Jane: “the loss of dignity of saying I can’t cope with this any more is soul destroying”.

Jane’s son, John, was diagnosed with Asperger syndrome when he was 9 years old. He is at a mainstream secondary school and hopes to study augmentation, artificial limbs and electronics at university.

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