Amanda - Interview 29  

Amanda - Interview 29

Age at Interview: 38
Sex: Female
Background: Amanda, a part time yoga instructor, and her husband have two children; Louis aged 5 and Georgia, aged 3. Ethnic background/nationality: White British.

Brief outline:Amanda’s two children have both been diagnosed with autism. They attend a special school for children with moderate learning difficulties which they both enjoy.

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Amanda has found joining a support group “essential” for her family.

 



Do you get any respite care?
 
I have not at the moment because I have not really looked into it, because there is so little I think it is something that we are going to need to do. I mean my family want us to go on a weekend so they are sort of building up to Louis and Georgia staying with them so we can go off and sort of have some free time and be a couple again [laughs]. But I mean, yes, because it is quite new to us, you know we have only just sort of gone through the stages of getting them into school, statementing and all that. But we have had sort of, we do a lot with the support group, [name of group]. They do like sort of a playgroup that we go to. It is on a Saturday and my brother comes and my mum and dad come, you know, it is the whole family is welcome to come along and that is really nice because you are meeting other families and you talk and the kids are all ages.
 
So you go along and you are sort of tearing your hair out because your child is smearing pooh or something and then you talk to the lady sat next to you, whose child is sort of three or four years older, who has gone through it and they don’t do it any more and they can give you tips and advice, you know, and you realise it is not going to go on for ever. And they arrange trips day trips. We go to, you know they have playrooms in the pubs. We sort of hire the room just for our group so all the kids are autistic and their brothers and sisters as well. They can all run around and nobody is going to you know, you are not in that environment where other people are sat looking. You can just go and be yourselves and they are the days you can sort of sit a bit and chat to the other parents because you know, you know, you know that no one’s is going to be shocked by what they do. Yes. Sort of trips and things.
 
I try to get to see speakers and things and training and stuff but I have not gone into respite care yet. I am a bit reluctant really because they are so little. I feel like it is my job. But you know I am probably going to have to at some point. You know just to get a break really.

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