Mary-Anne - Interview 25
Age at Interview:
Mary-Anne, a full time carer, lives with her son who is 11 years old. Ethnic background/nationality: White other.
Brief outline:Mary-Anne’s son, Arthur, was diagnosed with Asperger syndrome, Tourettes syndrome and elements of ADHD and OCD three years ago. He attends a special school which he enjoys.
More about me...
Okay. Well Arthur is 11 now and he is very full on [laughs]. He wants to be busy all the time. He is not a child who would just sit and read a book or would just you know. He kind of… it is like his mind is working overtime all the time but he is very self involved. My sister says he is selfish, very ego, egocentric as they say in the autistic spectrum books. Although when you point out to him that you know, “Oh you know what you have said, you know, that is horrible.” He will go, “Oh I am sorry, I am sorry.” And you know, “I didn’t mean it. I am just joking.” You know. He kind of, he has a… oh how can I explain it. Yes, he wants to be more like, he is quite funny, like on the autism, National Autistic Society thing, their newsletter. There was another one in this last one, about a research study about the mechanisms of personal memory of children with high functioning autism or Asperger's syndrome. So I said to him, I said, “Oh Arthur there is study about…” and I read it to him. And he goes, “My autism is not high functioning. I have control over it,” [laughs] because he didn’t quite get it that you know, high functioning autism is a set thing to Asperger's. You know, it was kind of like that must mean that autism has got control of you if its high functioning, you know.
He likes to… Arthur likes to think, he is very, I don’t know how do you explain it. He is not arrogant but he thinks he is very capable and he knows a lot, like he is very knowledgeable and that because I think I was always worried about his self esteem because I think often, you see, I think that is one of the things, with Tourette’s syndrome and the tics and twitches, if they have got it on their own without the Asperger's syndrome I think they can become very socially aware and conscious of their movements and their habits and everything, but having Asperger's syndrome as well, it kind of, in they don’t have that awareness which can be a blessing in a way, because as I say a lot of children with just Tourette’s, people with Tourette’s syndrome can be very prone to depression because they are so self conscious.
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