Alex – Interview 04b  

Alex – Interview 04b

Age at Interview: 28
Sex: Female
Age at Diagnosis: 3
Background: Alex is unemployed and single. Ethnic background/nationality: British

Brief outline:Alex was diagnosed with classic autism aged three years old. She lives independently in an adapted house, with some care assistance. A few years ago she was injured in a road accident and, as a result, now has epilepsy.

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Alex’s social worker admits she has no understanding of autism which is “scary”.

 



There’s been some kind of like accidents, like, you know, I’ve tripped over and fallen and broken my arm and stuff. And I’ve haven’t known who to call for help because the mental health team does have an out of hours number called the Crisis Team, and well I’ve got a nut allergy and ended up in hospital after accidentally eating nuts. And one of my friends on the internet knew I went to hospital and called the Out of Hours Crisis Team. They said to her, they asked her if my mental health was intact, and she said, “Well yes, she’s just eaten nuts and she’s in hospital, like quite unwell.” And they said they can’t do anything if my mental health is intact. So they wouldn’t come out and support me. And I was stuck in a hospital, and you know, I told them, told the hospital that I was leaving. They gave me tablets. Didn’t have a clue what I was meant to do with these tablets. Got home and my PA ended coming round and spending over an hour trying to find out what these tablets were and when I was meant to be taking them, because they just gave me a strip of tablets, they didn’t them in a box or any instructions. 
 
You know, and it’s taken a very long time for the mental health team to actually grasp any concept of autism whatsoever. And now they’re just passing the buck. They’ve just said, “If you’ve got a problem phone the care company. If the care company think it’s something that Social Services should be dealing with, they’ll contact us.” So although I have a social worker, she’s not actually willing to do anything any more, because … I mean she openly admits that she has no understanding or training in autism which is quite scary.
 

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