Daniel and Margaret - Interview 54  

Daniel and Margaret - Interview 54

Age at Diagnosis: 11
Background: Daniel and Margaret have two children aged 7 and 4. Ethnic background/nationality: White British.

Brief outline:Daniel was diagnosed with Asperger syndrome when he was 11 years old. He does voluntary work one day a week and Margaret runs a support group for people with Asperger syndrome.

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Daniel has realised that people with Asperger syndrome are all different through meeting different people at a support group.

 



Daniel: Yes something like that. But I had known for a quite a few years that I had Asperger's and I say that because it was like, it took so long to get a diagnosis and everything so obviously I realise now that I am sort of trying to think what it was like then. So I was sort of told, but I didn’t really understand it. And I never really understand it, until up until a few years ago when we started our own support group. …
Margaret: He still struggles with some bits of it now.
Daniel: The main thing is because I have met so many other people with Asperger's and I realise that actually …
Margaret: They are not like you. A lot.
Daniel: Not one of them is the same as me. And the thing is, is, you have got to remember just because somebody has got Asperger's doesn’t mean they have not had a different upbringing and not had, you know….
Margaret: Different experiences.
Daniel: Different experiences and don’t have their own, you know people with Asperger's still have a personality and nobody is the same whatsoever. Obviously some of the issues are the same but the actual varying degrees of what those are unbelievable [kiddie talking in background]. But yes, so I have learnt a lot about Asperger's because of meeting people ..And sort of …
Has it helped you …?
Daniel: It has helped, it has helped my own awareness of myself as well as what other people are feeling and everything. I think my theory of mind and things like that have improved a lot. And just sort of understanding and sort of trying to help people accept, sort of accept their disability because at the end of the day it is you. And to be honest with, if there was one of these sort of cures or anything else, .would you want it, because you wouldn’t be you would you? I mean if the could like ….
Daniel: … sort of very futuristic kind of idea of a cure would be to actually get rid of all the bad bits and keep the good bits. [laugh] Then yes, I would probably want to accept it but other than that I wouldn’t want to get rid of it, because I would lose a hell of a lot as well.

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