I was very lucky always getting the best medical treatment, and virtually easy access to the highest authority in the neurological world, both in Israel and the UK. Information, since I think since the gene was identified as DYT1 which is the mutation common amongst the Ashkenazi Jews. Information was rather easily available.
Obviously before you go into brain surgery you always have one more questions. I did speak to a few patients who underwent the operation before me, before I had the first one. And, it was always helpful and reassuring and, and, good results. But it wasn’t, if you know what information to look for, it’s very easy to find it, relatively easy. But it takes some investigation and, and trying to activate all the different information agents that you’ve got. But we were able to gather a relatively good information. Albeit we gambled on the wrong horse in terms of the first operation.
In retrospect there’s no comparison between the first operation, which was done privately and which cost us a lot of money, which was covered by the insurance, but we paid an absolute fortune and received a five star service with terrible results. Whereas the second operation which was done in this amazing place, in [hospital B], which is a remarkable centre. I still go every now and again to get the system tested and to get the pacemaker. That’s where they do the fine tuning, so they’re still doing the fine tuning. It’s minor twists of it, but just to get absolutely the most of it, it’s such a great sense of team work, and, dedication and they will go all the way just to make sure that you get the best service.
