The gait was... when I looked at the letter from, from Professor A yesterday, he said, “Your gait will deteriorate, and you will be able to walk albeit it in a very bizarre way.” And I think that’s the best description. It’s a very bizarre way. It’s just walking with involuntary movement of the legs and the arms, and the trunk. It’s just all over the place, it’s shambolic. You can hardly describe it as a walk, it is like a jellyfish kind of trying to walk. It’s quite, I wouldn’t say, I’m not quite sure. I actually provided a short video of my gait, pre and post-op. If you’re interested in that obviously it’s really hard to describe in words but it’s quite dramatically odd.
One of the odd things about this condition is that, I could easily walk backward. But the second I walked backward, it was as if this condition only kicked in when I was in forward gear. As soon as I put in reverse, it’s almost like vanished. Well I wouldn’t say vanished, but I could walk backward, much better than I could walk forward. I remember going for a walk once in [town] area, with L and her family down there. And I remember walking for miles backward, it’s extraordinary but it’s true, walking backward was much easier.
And I’m not the first person, when I mentioned it to the neurologist, he said, “You’re not the first person to mention it.” Absolutely no explanation or suggestion why. Why this condition kicks in a certain pattern of movement and not in others. But that’s the way it is. Even in the house I used to walk here to there, I used to walk backwards, before the second op.