Rebecca: Only once. [Laughs] I did the, they, well this is all through the CF Trust Forum. There was I don’t suppose you could call her a girl any more. [laughs] There’s a lady called Emily who was very ill. She was 20 and was waiting for a double lung transplant. She had already had two or three lung collapses. Was, you know, the kind of person you just don’t want to hear about. But she was just, she’s just such an amazing character, she really gave everybody a lot of inspiration. And she planned to have a group of, of what she’d referred to as ‘Emily’s Angels’ do the women’s 5k run at Hyde Park which is usually September time. I mean this was what was she? She was, was she even a year? Oh she must have been over a year.
Aaron: Yes, well I mean about fifteen months.
Rebecca: Yes, about fifteen months, so just over a year and we were still in that kind of yes, we were going to raise as much money as we can and we’ll tell the world and, and kind of then the realisation that actually we didn’t want to tell the world [laughs] came in. So that, and then we met up with quite a few, well quite a few of the mothers, like kind of more put faces to names more than necessarily communicating in a different way, you know, we communicated through the Forum. And that kind of worked.
But other than that we don’t tend to meet up with people, because the kids can’t up meet up because they’re a cross infection risks. So it’s actually quite hard. You don’t tend to, it’s easier to have a long distance because you’re not worried about meeting them in the street.
I think there was, there was another family near here, but they’ve moved away. So… But yes, [hospital name], hilariously if you live round here and you are diagnosed through a different route, you’d actually go to [hospital name], not [hospital name]. So anyone round here who has CF is diagnosed, would be going to [hospital name], so we wouldn’t know anyway.
So…
Rebecca: Which is obviously much more obvious and much more serious in a lot of ways. It’s very complicated. And she, you know, we kind of talk together, because we’re both in a situation where unfortunately our children are not a hundred per cent, but you know, kind of we talk about things like the school, her daughter goes to the same school as [daughter’s name] does, so we talk about how the school cope with their conditions and what provision the school’s making for them. And she’s been very helpful and very supportive and, but equally it’s gone both ways. You know, she’s asked me questions and I’ve asked her questions and so that’s been very good.
