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Experiences of health care :
Getting a diagnosis
Getting health and social care
Making decisions about treatment
Taking anti-HIV drugs
Challenges of anti-HIV drugs
Looking after yourself :
Coping with mental health problems
Dealing with your thoughts
Talking about it
Becoming informed
Gaining power and strength
Spirituality and religion
Holistic health
Disclosure, discrimination and other challenges :
Secrecy and telling people
Support groups
Dealing with difficulties, finances and benefits
Work and routine
Prejudice, stigma and discrimination
Telling children and parents
Negotiating Sex :
How people became infected
Casual sexual encounters
Sex in relationships
Telling sexual partners
Looking ahead :
Living now & in the future
Illness and death
Finally, what people with HIV want you to know
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HIV
Subject index
Clip
Chronic health issues
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HIV
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Aged 56-65
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Interview 34
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He moved to a different HIV clinic and found the care there better. (Read by an actor.)
His wife took the news about his HIV very badly and their relationship broke up. He felt depressed and had suicidal thoughts. The care of HIV clinic staff and support groups were very important to his survival. (Video and audio clips read by an actor.)
Chronic health issues
>>
HIV
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Aged 36-40
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Interview 17
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Taking your time and developing a relationship with your doctor is important.
He took time to work out who to disclose to and to make treatment decisions (he currently takes Combivir and efavirenz). He initially suffered mental health side-effects (e.g. trouble sleeping, irratibility) but now has few problems with medication.
Chronic health issues
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HIV
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Aged 36-40
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Interview 20
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The HIV clinic nurses went out of their way to help him feel at ease and cared for. (Read by an actor.)
He started treatment soon after diagnosis (efavirenz and Combavir) and his viral load quickly became undetectable and he had few side effects. He resists blaming his life problems on HIV. (Video and audio clips read by an actor.)
Chronic health issues
>>
HIV
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Aged 36-40
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Interview 06
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He likes the way that his consultant and his psychologist communicate with each other.
He is currently receiving psychotherapy, mainly for his HIV diagnosis and sexual assault. On benefits, he keeps himself busy, and is positive about life and returning to work.
Chronic health issues
>>
HIV
>>
Aged 36-40
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Interview 28
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The positive support he got from his HIV clinic made it easier for him to deal with less informed professionals.
He currently has an undetectable viral load and about 900 CD4 cells. He did not respond well to earlier regimes, but is now doing well on 'salvage therapy,' although his medication has numerous side-effects.
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