When brain scan was found to be normal was admitted for a week's assessment. Diagnosed as having Pick's disease (fronto-temporal dementia) Cared for at home, with day care and regular residential respite, finally in residential care.
Was cared for at home until very recently when he was admitted to residential care. Before this he attended a day centre with residential respite every 6 weeks. Later was on Exelon but taken off when he developed side-effects.
Her mother, a strong minded widow, bitterly resisted surrendering her freedom and finally had to be sectioned before being transferred to residential care. She died recently twenty years after the first signs of her dementia, in a nursing home.
Her husband developed Picks' disease when he was 57. The patchy nature of his dementia made it difficult to convince people that his problems were real. Delay in getting the diagnosis meant they experienced extreme difficulties in accessing his health insurance.
Cared for in her own home, initially supported by cleaner who had been with her for 20 years. Since the cleaner retired they have installed a live in carer. Arrangements for transfer to residential care in the near future are being considered.
Her mother had been an independent widowed woman. They had hoped when they were able to move her nearby that this arrangement would be adequate for several years but before long she had to go into residential care.
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