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He was cared for at home for 7 years. When things got really difficult he spent 18 months in residential care after which his wife was able to bring him home again with the additional support of either a live-in carer, or two live-in carers in rotation - working alternate weeks.
Her mental and physical condition has deteriorated steadily since she herself first recognized she had a problem in 1991. She can now no longer talk or walk. Cared for at home and day-care centre.
Cared for at home with help of friends, relatives and neighbours while carer worked part time. Treated with Aricept and Rivastigmine. Admitted for respite care in 2000 and never returned home after that.
Has been able to cope with caring for him at home. He attends a day centre and he has regular respite care. Doesn't feel ready to consider full time residential care for him but has felt it necessary to look out for homes which might be suitable.
Her mother, a strong minded widow, bitterly resisted surrendering her freedom and finally had to be sectioned before being transferred to residential care. She died recently twenty years after the first signs of her dementia, in a nursing home.
Her husband developed Picks' disease when he was 57. The patchy nature of his dementia made it difficult to convince people that his problems were real. Delay in getting the diagnosis meant they experienced extreme difficulties in accessing his health insurance.
At 80 her mother was still a vigorous, independent woman. First care home insisted on her being sectioned so she was moved to a locked assessment ward. Appalled by this her daughters found a secure long-term home for her where she spent the last 18 months of her life.
Her husband developed Picks' disease when he was 57. The patchy nature of his dementia made it difficult to convince people that his problems were real. Delay in getting the diagnosis meant they experienced extreme difficulties in accessing his health insurance.
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