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Carers of people with dementia
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Diagnosis :
Suspicions - early signs of dementia
Signs of dementia
Deterioration, severe dementia
Making the diagnosis
Tests
Getting the diagnosis
Genetic testing
Ideas about causes of dementia
Treatment :
Treatment for Alzheimer's disease
Relieving symptoms
Strategies- some suggestions from carers
Becoming a carer :
Becoming a carer
Caring from a distance
Friends and family
Sources of support
Assessments and care plans
Home carers
Day care and respite
Problems with provision
Looking for information
Residential care :
Arranging residential care
Becoming a resident
Difficult decisions :
Wandering
Driving
Money
Self care
Respect
Living with change
Complicated emotions
End of life
Advice to other carers :
Advice to other carers
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Carers of people with dementia
Subject index
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Nerves & brain
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Carers of people with dementia
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Men caring for partners
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Interview 46
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He can only guess at what she is feeling.
When brain scan was found to be normal was admitted for a week's assessment. Diagnosed as having Pick's disease (fronto-temporal dementia) Cared for at home, with day care and regular residential respite, finally in residential care.
Nerves & brain
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Carers of people with dementia
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Men caring for partners
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Interview 31
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Faces up to the loss of the very little that still remains of the person who was his wife.
He gave up work to be a full time carer but when she took to her bed for several months it was decided that she needed residential care. As she refused, it was necessary to section her to make the transfer possible.
Nerves & brain
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Carers of people with dementia
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Caring for parents
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Interview 52
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Describes how he at least was not aware that his father had ever actually been diagnosed with Alzheimer's disease.
Deterioration was gradual over 14 years. Day care was gradually increased. Hospitalised when he became ill and then went into residential care where he was happy. Difficult for his wife as they had been married 74 years. She is now also in residential care.
Nerves & brain
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Carers of people with dementia
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Men caring for partners
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Interview 31
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Describes why he feels it was inappropriate to refuse to include him in the investigation of his wife's problems.
He gave up work to be a full time carer but when she took to her bed for several months it was decided that she needed residential care. As she refused, it was necessary to section her to make the transfer possible.
Nerves & brain
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Carers of people with dementia
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Men caring for partners
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Interview 07
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The specialist informed both him and his wife of her diagnosis. Over time he came to believe this had been appropriate.
Gradual onset mistaken for depression. Diagnosis given jointly to husband and wife. Slow progression. Problem with restlessness and wandering. Very involved with the local Alzheimers disease society. He tries to involve her in decisions where possible. Initially prescribed antidepressants later given trial of Reminyl. Later benifited from sedatives and sleeping tablets.
Nerves & brain
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Carers of people with dementia
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Caring for parents
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Interview 13
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Describes how she was able to care for her mother who was in Paris through frequent telephone calls.
Her mother developed Lewy Body Dementia while living alone in Paris. After many crises her mother has accepted that she cannot return to her flat and that she move to England to live with her daughter. Treated with Exelon then Aricept.
Nerves & brain
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Carers of people with dementia
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Caring with young children
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Interview 21
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Benefited from being open with her children about how their father's dementia affected all of them.
Her husband developed Picks' disease when he was 57. The patchy nature of his dementia made it difficult to convince people that his problems were real. Delay in getting the diagnosis meant they experienced extreme difficulties in accessing his health insurance.
Nerves & brain
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Carers of people with dementia
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Men caring for partners
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Interview 46
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Is upset when he worries about her being alone and unable to communicate particularly at night.
When brain scan was found to be normal was admitted for a week's assessment. Diagnosed as having Pick's disease (fronto-temporal dementia) Cared for at home, with day care and regular residential respite, finally in residential care.
Nerves & brain
>>
Carers of people with dementia
>>
Men caring for partners
>>
Interview 31
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It is becoming increasingly difficult to communicate with his wife who does not recognise her children or remember past events.
He gave up work to be a full time carer but when she took to her bed for several months it was decided that she needed residential care. As she refused, it was necessary to section her to make the transfer possible.
Nerves & brain
>>
Carers of people with dementia
>>
Men caring for partners
>>
Interview 46
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Remember all the good things rather than dwelling on the past.
When brain scan was found to be normal was admitted for a week's assessment. Diagnosed as having Pick's disease (fronto-temporal dementia) Cared for at home, with day care and regular residential respite, finally in residential care.
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