Interview 31  

Interview 31

Age at Interview: 57
Sex: Male
Age at Diagnosis: 56
Background: Carer is a husband in his 50's looking after his wife with Picks disease. They have three children.

Brief outline:He gave up work to be a full time carer but when she took to her bed for several months it was decided that she needed residential care. As she refused, it was necessary to section her to make the transfer possible.


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Recognises why a consultant is unable to predict how the dementia will progress.

 



So I think that relative to stages it's very difficult if not impossible to say that during the first year this happened; during the next year or eighteen months that happened and to actually put the changes that occur into a time scale, which is drastically what I tried to do and wanted to do with the consultant early on. I now fully understand why he couldn't give me much indication other than tell me the likely overall happenings that would occur without a time scale.

I don't know if there can be, I suppose there can be a totally worse next stage which some of the people in the nursing home are, probably in which is total non-understanding of anything or of anybody, not taking any notice of anything or anybody. Perhaps just walking about totally aimlessly and not having any indication at all of any of the - I'm not sure what word I'm looking for - faculties of life, what life is or any of the things that we take for granted: understanding, speech, recognition, acceptance, accepting, giving, all those things that we take for granted and eventually go.

So I think that if I sat down I could probably pinpoint certain changes within a rough time scale or a time span that it's changed over. That would be for [my wife] but that wouldn't necessarily be for any other person that's suffering with. with Alzheimer's.

I think perhaps some of the changes would be identical like the loss of speech, like the loss of understanding, language, like the lack of, loss of, of becoming incontinent. I think they would be applicable to everybody but within there I think whether a person becomes aggressive or non-aggressive I don't think anybody can really predict those changes, those happenings that will occur.

So from my own experience I think I would summarise the question by saying there are distinct changes that occur within time spans but those changes that occur and the time span, the changes that occur within a time span could differ from one person to another who is actually suffering from, from Alzheimer's. And I, there might be a rough overall pattern of the main changes that I mentioned, like loss of speech, loss of understanding of words, lack of communication, incontinence, we might be able to categorise those as specific thing but I think the behavioural things that happen might vary from one person to another.

Jonathan Miller - Dementia
Carers of people with dementia montage
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