Karen - Interview 23  

Karen - Interview 23

Age at Interview: 39
Sex: Female
Background: Karen, a full time carer, lives with her two daughters aged 14 and 12. Ethnic background/nationality: White British

Brief outline:Karen’s old daughter was diagnosed with Asperger syndrome when she was 10 years old. She has since been diagnosed with Oppositional Defiance Disorder and her mother has removed her from school because appropriate support was not provided.

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Karen started a support group as the existing one was for parents of pre-school children.

 



So I had a committee meeting because I founded, after I got the diagnosis for Nicole, I actually one of the first questions I asked was is there a local support group and was told no. There was nothing, nothing at all. I have since found out that there is a support group run over at [hospital] but that is usually for parents of children with pre-school, of pre-school age, whereas when we got the diagnosis for Nicole she was ten which is quite common in Asperger's. I think the average age for diagnosis is about 9, 10 because of their verbal ability it is not picked up on as early as classic autism so early intervention for children with Asperger's is not something that usually occurs.So I actually started my own support group in [town]. I have got we have got about eighty people on the books now.

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