Healthtalkonline

Click here if you want to share your story about a condition that’s already covered on Healthtalkonline
 
At healthtalkonline we are currently looking for volunteers to be interviewed on these subjects:

Life changing injuries in London

Healthtalkonline has been funded by the City Bridge Trust, a London based charity, to create a new website about life-changing injuries. If you have had an injury or an accident that has changed your life, we would love to hear from you. Your story will be used to help people who have recently been injured and their families. 

Taking part involves an interview at your home or another location convenient for you. You will be invited to talk about your experiences of injury, treatment and rehabilitation, and the impact on the rest of your life (e.g. finances, work, family, relationships, travel). 

If you have any questions or would like to take part, please contact the researcher, Anne-Marie. 

Email: anne-marie.boylan@phc.ox.ac.uk  Phone: 01865 289305.

Atrial Fibrillation

Do you suffer from Atrial Fibrillation?  If so we’d like to hear from you. Healthtalkonline is working on a project on Atrial Fibrillation funded by Georgina Craig Associates - a social enterprise that works with the NHS to make care more patient-centred. The data will be used initially as a basis for a programme to support NHS clinical commissioning groups make experience-led commissioning decisions, and, subject to further funding, to create a new heatlhtalkonline website about what it is like living with Atrial Fibrillation. We would like to hear from people who would be interested in telling us their story.  
If you would like more information on taking part please contact Jenny Hislop on 01865 289325 email jenny.hislop@phc.ox.ac.uk or Kate Neal on 01865 617837 email kate.neal@phc.ox.ac.uk
 

Asthma

Do you suffer from asthma?  Whether you’ve had it since childhood, or were diagnosed later in life we’d like to hear from you.  Healthtalkonline is creating a new website about what it’s like living with asthma and we would like to hear from people who would be interested in telling us their story. 
If you would like more information on taking part please contact Susan Kirkpatrick, Senior Qualitative Researcher on 01865 617701 or e mail susan.kirkpatrick@phc.ox.ac.uk
This research is funded by National Institute for Health Research (NIHR)
 

Patients Experiences of Penile Cancer

Have you been treated for penile cancer? Has your husband or partner experienced penile cancer? Do you have links into an organisation which works with men who have been diagnosed with penile cancer?  If the answer to any of these questions is yes we would like to hear from you.

The research is funded by the National Institute for Health Research and will feed into a new section on the www.healthtalkonline.org. If you’re are interested in taking part in the research or would like more information, please contact Karl Witty at K.Witty@leedsmet.ac.uk, 0113 8121968

Carers of people with Multiple Sclerosis

We are curently recruiting for people who care for someone with Multiple Sclerosis, either a family member or friend. The project is funded by the National Institute for Health Research and will form a new section on www.healthtalkonline.org. For more information, please contact  Francie.smee@phc.ox.ac.uk  or 01865 289328.
 

Have you given up smoking and would like to share your experiences with others?
Are you aged over 16?

People have different experiences of giving up smoking from people who can quit over night to people who try for many years to stop. Healthtalkonline is creating a new website about these experiences so if you would like more information about taking part click here or contact Laura Griffith on 01865 617767 or Laura.Griffith@phc.ox.ac.uk.
 

Conditions which threaten women's lives in pregnancy and childbirth.

We are recruiting for a new module on obstetric complications and are interested in hearing from women who have experienced life-threatening conditions in pregnancy, childbirth or the immediate post-natal period. Conditions might include haemorrhage, pre-eclampsia or septicaemia. Although rare, "near-miss events" can have severe consequences for women, their babies and families.


We are conducting a study into the experiences and long term follow up needs of these women and their families to develop teaching materials and a new module for Healthtalkonline and are interested in hearing from women or their families throughout 2011.


For more information please contact, Lisa Hinton, Senior Qualitative Researcher at lisa.hinton@dphpc.ox.ac.uk

Heart Failure Update - experiences of:

Coronary artery bypass grafting

Revascularisation

Biventricular pacing

LVAD-bridge to transplantation

maria.salinas@phc.ox.ac.uk

Youthhealthtalk

Are you 16 or over? Would you like to be interviewed about your own experiences for these sites?
 
If you can help us with these, please send us your details.
 
If you want to add your story to any of the conditions we've covered already, please login as a forum user. You can then tell your story in the forum for that condition, and join in with forum discussions.

Experiences of eating disorders

We're now recruiting young people with experiences of eating disorders.Please click here to find out more.

Young Londoners and life-changing injuries

Hi, I'm Anne-Marie, a researcher for Healthtalkonline. I'm looking for young people living in London who have had a life-changing injury or accident. This might be a brain injury, a spinal injury, limb loss, or loss of sight or hearing. Your story will be used to help people who have recently been injured and their families.
 
If you want to hear more, please contact me by email anne-marie.boylan@phc.ox.ac.uk, phone 01865 289305